Name: 【TED】Paul Knoepfler：設計師嬰兒的倫理困境（設計師嬰兒的倫理困境|Paul Knoepfler）。 (【TED】Paul Knoepfler: The ethical dilemma of designer babies (The ethical dilemma of designer babies | Paul Knoepfler))
Uploaded: 2021-01-14T06:49:14.000Z
Duration: 18 min 20 s

如果我可以幫你做出一個訂製嬰兒，

and I as a scientist decided to go down that road together?

與身為科學家的我 決定一起合作完成呢？

如果我們認為「訂製寶寶不對」，

but many of our family, friends and coworkers

很多人卻做了那個決定， 那又會如何呢？

Let's fast-forward just 15 years from now.

You have your daughter, Marianne, next to you,

坐在你旁邊的是你女兒，瑪麗安，

and in 2030, she is what we call a natural

because she has no genetic modifications.

And because you and your partner consciously made that decision,

而因為你和你的另一半所做的決定，

many in your social circle, they kind of look down on you.

使你在很多社交場合中，讓人有點瞧不起你。

They think you're, like, a Luddite or a technophobe.

他們認為你是個反對新科技或排斥科技產品的人。

Marianne's best friend Jenna, who lives right next door,

你女兒最好的朋友珍娜，就住在你家隔壁，

She was born a genetically modified designer baby with numerous upgrades.

她是一個基因改造寶寶，而且升級了很多功能。

using a new genetic modification technology

它有一個好笑的名稱，叫做「CRISPR」，

The scientist that Jenna's parents hired to do this

珍娜父母親聘請科學家來做這件事情

introduced CRISPR into a whole panel of human embryos.

因為他們要在一整盤的胚胎上使用 CRISPR 技術，

and they predicted that that little tiny embryo, Jenna's embryo,

並確定篩選出來的小胚胎，珍娜的胚胎，

And now, Jenna is an actual, real person.

She's sitting on the carpet in your living room

And your families have known each other for years now,

If you're honest with yourself, she's smarter than you,

如果你夠自覺的話，她的確比你聰明，

她長得很漂亮、身材高挑，又有運動細胞，

And in fact, there's a whole new generation

會像珍娜一樣，都是基改小孩。

they're healthier than their parents' generation,

似乎比他們父母那個世代的人更健康，

而且他們的醫療照顧成本也比較低，

They're immune to a host of health conditions,

他們在健康條件方面，對疾病是免疫的，

包括愛滋病及其它基因上的疾病。

but you can't help but have this sort of unsettling feeling,

但你難免會有一種不安的感覺。

a gut feeling, that there's something just not quite right about Jenna,

一種覺得珍娜好像不太對勁的直覺，

and you've had the same feeling about other GM kids that you've met.

而且你對其他你遇到的基改小孩都有同樣的感受。

You were also reading in the newspaper earlier this week

那個禮拜稍早，你讀到了一篇新聞，

that a study of these children who were born as designer babies

一篇有關於基因改造小孩的研究，

研究指出他們可能有一些狀況了，

like increased aggressiveness and narcissism.

is some news that you just got from Jenna's family.

你從珍娜家人那邊聽到的事情。

she's now going to be going to a special school,

a different school than your daughter Marianne,

and this is kind of throwing your family into a disarray.

這件事讓你的家人陷入一場混亂。

and last night when you took her to bed to kiss her goodnight,

昨晚妳跟女兒在床上道晚安時，

she said, "Daddy, will Jenna even be my friend anymore?"

她問你： 「爸爸，珍娜不會再跟我做朋友了嗎？」

So now, as I've been telling you this imagined 2030 story,

雖然，我現在說的是 2030 年想像出來的場景，

I have a feeling that I may have put some of you

我在想，各位是不是覺得我所說的

into this sci-fi frame of reference. Right?

一種好像在讀科幻小說一樣的感覺。

Or maybe, like, in Halloween mode of thinking.

或者，像是萬聖節前夕的場景。

But this is really a possible reality for us,

我是一位幹細胞基因研究人員，

我已經可以看到 CRISPR 這項新技術

And we may find ourselves in that reality,

而我們人類也許可以在那個實境當中找到自己，

and a lot will depend on what we decide to do today.

而這取決於我們今天所做的決定。

And if you're still kind of thinking in sci-fi mode,

consider that the world of science had a huge shock earlier this year,

思考一下今年稍早科學界發生的重大事件，

and the public largely doesn't even know about it.

Researchers in China just a few months ago

reported the creation of genetically modified human embryos.

發表了他們已經創造出 人類基改胚胎。

And they did it using this new CRISPR technology.

他們就是運用 CRISPR 這項技術。

but I still think they sort of cracked the door ajar

他們已經掀開了潘朵拉盒的秘密了。

And I think some people are going to run with this technology

Now, before I go on, some of you may hold up your hands and say,

在我繼續說明之前， 你們有些人可能會想舉手說，

You can't just go off and create a designer baby."

你不能不管法律，執意要做這件事吧？」

And in fact, to some extent, you're right.

沒錯，在某種程度上，你是對的。

But in many other countries, including my country, the US,

但有很多國家，包括我的國家，美國，

there's actually no law on this, so in theory, you could do it.

實際上根本都還沒有相關的法律規範，所以理論上，你可以做。

【TED】Paul Knoepfler：設計師嬰兒的倫理困境（設計師嬰兒的倫理困境|Paul Knoepfler）。 (【TED】Paul Knoepfler: The ethical dilemma of designer babies (The ethical dilemma of designer babies | Paul Knoepfler))

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【TED】Paul Knoepfler：設計師嬰兒的倫理困境（設計師嬰兒的倫理困境|Paul Knoepfler）。 (【TED】Paul Knoepfler: The ethical dilemma of designer babies (The ethical dilemma of designer babies | Paul Knoepfler))

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