Name: 運動神經元疾病讓我失去了聲音，但人工智能讓我重獲了聲音 | BBC News (‘Motor neurone disease left me without a voice but AI gave it back’ | BBC News)
Uploaded: 2025-08-21T12:39:17.000Z
Duration: 4 min 4 s

When Sarah Ezekiel was diagnosed with motor neurone disease more than 25 years ago, she lost both her mobility and her voice.

25 年多前，莎拉-伊澤基爾（Sarah Ezekiel）被診斷出患有運動神經元疾病，從此失去了行動能力和聲音。

過去簡單式

But after discovering an old VHS tape which included a snippet of her original Cockney accent, artificial intelligence was able to recreate that original voice, something Sarah's children had never heard before.

但是，在發現了一盤舊的 VHS 錄像帶，其中有她原來的考克尼口音片段後，人工智能能夠重現她原來的聲音，這是莎拉的孩子們以前從未聽到過的。

Emma Tracy, the presenter of the BBC's Disability and Mental Health Podcast, Access All, has the story.

英國廣播公司殘疾與心理健康播客 "Access All "的主持人艾瑪-特雷西（Emma Tracy）為我們講述了這個故事。

I was diagnosed with MND when I was 34 and pregnant with my second child, Eric, in April 2000.

我在 34 歲時被診斷出患有 MND，並於 2000 年 4 月懷上了我的第二個孩子 Eric。

The rather robotic voice of Sarah Ezekiel.

莎拉-伊澤基爾相當機械的聲音。

Motor neurone disease means her only way of speaking is through a computer.

運動神經元疾病意味著她只能通過電腦說話。

Each word painstakingly typed out using a machine that tracks her eye movement.

每一個字都是通過一臺跟蹤她眼球運動的機器精心打出來的。

She's lived with motor neurone disease for 25 years.

她患運動神經元疾病已有 25 年。

The years before her synthetic voice were hard.

她合成聲音之前的歲月是艱苦的。

I felt very isolated and was struggling to communicate with my carers too.

我感到非常孤獨，也很難與照顧我的人溝通。

It was a very difficult time but things did improve greatly when I could use a computer.

那是一段非常艱難的時期，但當我可以使用電腦時，情況確實大有好轉。

It's a very posh voice you have there Sarah.

After such a long time I couldn't really remember my voice before MND.

過了這麼久，我真的記不起自己在 MND 之前的聲音了。

When I first heard it again I felt like crying and it was very emotional.

當我再次聽到這首歌時，我想哭，非常激動。

How close is it to your original speaking voice do you think?

您認為這與您最初說話的聲音有多接近？

I think it's pretty good although I wonder if I would sound older now.

雖然我不知道自己現在聽起來是否會更老，但我覺得還不錯。

Oh well, there's no harm in being a bit Peter Pan I reckon when it comes to a new voice.

哦，好吧，我想，面對新的聲音，有點彼得-潘（Peter Pan）也沒什麼不好。

My carers and friends love my voice which is really nice.

我的照顧者和朋友都喜歡我的聲音，這真的很好聽。

I feel like myself and I don't sound like a robot.

我感覺自己就是我自己，聽起來不像機器人。

People didn't know I was Cockney with a slight lisp.

人們不知道我是個有點口齒不清的倫敦佬。

I feel a bit more exposed because I didn't really like my voice before and wondered if people looked down at me because I was from the East End.

我覺得自己的嗓音更有魅力了，因為我以前並不喜歡自己的嗓音，還懷疑人們會不會因為我來自東區而看不起我。

I don't care about that now and I'm glad to be back.

現在我不在乎這些了，我很高興能回來。

Let me play you the video that Sarah sent me.

讓我給你播放莎拉發給我的視頻。

Simon Poole is part of the team that recreated Sarah's voice.

西蒙-普爾是為莎拉重新配音的團隊成員之一。

Sarah had a small recording of her voice from over 20 years ago on a VHS tape.

莎拉有一小段她 20 多年前的錄音，錄在一盤 VHS 錄像帶上。

Only 8 second sample and it was a very low quality recording.

只有 8 秒鐘的樣本，而且錄音品質很低。

Despite it not being perfect that is good enough for an AI voice creation tool to work with.

儘管並不完美，但對於人工智能語音創作工具來說，這已經足夠好了。

It just needs a small sample of your voice and then it knows what voices normally sound like and it can use that to fine tune its model to sound like your voice.

它只需要你的一小段聲音樣本，然後就能知道你的聲音通常是什麼樣的，它就能利用這一點來微調模型，使其聽起來像你的聲音。

I thought you know I gave her a bottle one night and she was so much happier.

我想你知道，有一天晚上我給她餵了一瓶奶，她就開心多了。

太不可思議了，真的太不可思議了。

For Sarah's children it's been a revelation.

對於莎拉的孩子們來說，這無疑是一個啟示。

Well I knew she was East London but I didn't know she had a Cockney accent.

我知道她是東倫敦人，但不知道她有倫敦腔。

It's taken me a while to process it but really hearing it in the house it's made me really happy and quite emotional.

我花了一些時間來處理這件事，但真正在家裡聽到它時，我真的很開心，也很激動。

It's mum isn't just a disabled person in the corner with a robot that doesn't relate to her.

它的媽媽不僅僅是一個坐在角落裡的殘障人士，還有一個與她毫無關係的機器人。

She's here, we can hear her, we can feel who you are as a person.

她就在這裡，我們能聽到她的聲音，我們能感受到你的為人。

I would say the best thing about her new voice is how much emotion comes through and how it's so much clearer what mum's feeling and what she's trying to get across, what mood she's in.

我想說，她的新歌聲最棒的地方在於情感的流露，以及媽媽的感受、她想表達的東西、她的心情都如此清晰。

I'm not sure because I hated my voice before but it's better than being a robot.

我不確定，因為我以前很討厭自己的聲音，但總比當機器人好。

Sarah, she's an artist, she's written a play, she's an advocate for others with motor neurone disease and she's a mother of two.

莎拉是一位藝術家，她寫過一部劇本，是運動神經元病患者的代言人，也是兩個孩子的母親。

This is a special moment for the whole family.

這對全家人來說都是一個特殊的時刻。

My greatest gift is to have been able to let my children hear my voice again.

我最大的禮物就是能讓我的孩子們再次聽到我的聲音。

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運動神經元疾病讓我失去了聲音，但人工智能讓我重獲了聲音 | BBC News (‘Motor neurone disease left me without a voice but AI gave it back’ | BBC News)

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