字幕列表 影片播放 列印英文字幕 [MUSIC PLAYING] ROBBIE IVEY: You come into my room, you know my two favorite passions. The outdoors and sports. [CHEERING CROWD] It's a place where I can just be me. [GUNFIRE ON TV] Look behind you. Nobody else can judge what I do, or anything. And it's a great place to be. BILL WEIS: The first day I was at Robbie's house, it was very evident that Robbie's bedroom was his universe. CARRIE IVEY: Ready? ROBBIE: I was diagnosed at the age of five with duchenne muscular dystrophy, which eats away at my muscles cells. CARRIE IVEY: The dystrophin protein is not made in the muscle. So the muscle tends to waste away. At age 8, he started to slow down. 12, he was in a wheelchair. At 19, he's got very limited use of hands. SPEAKER 1: Ah, that's crooked. CARRIE IVEY: But, you know, he's got the same thought process every other 19-year-old boy has. Cars, girls, video games. ROBBIE IVEY: My mom is like my main advocate. She's just there for me. Helps me do basically every function I need to do. CARRIE IVEY: Want a drink? ROBBIE IVEY: And almost everything was hard to do without calling for assistance. Before Bill came along. Bill's our tech genius. CARRIE IVEY: I met Bill through the muscular dystrophy association. He asked if we needed anything. And I said, well, if you happen to know anybody that knows anything about voice activation, be phenomenal. BILL WEIS: Hey, Google. Turn on feet. GOOGLE: OK. Turning on the feet. CARRIE IVEY: A couple days later, I had a phone call. BILL WEIS: Carrie mentioned right off that Robbie's bed is something he can no longer control. He would have to holler to Carrie to make a small, incremental change in the bed so he was no longer sore. CARRIE IVEY: I was up every hour, hour and a half. I was getting no sleep. Robbie was getting no sleep. BILL WEIS: And so I saw how coming up with a solution for Robbie bed would have an impact on both of them. ROBBIE IVEY: He had to do a lot of research to figure out how to make this work. BILL WEIS: Hey, Google. Turn on head. GOOGLE: You got it. Turning on the head. CARRIE IVEY: And from there, little by little, he kept adding, and adding, and adding. ROBBIE IVEY: Hey, Google. Turn on TV. [DING] GOOGLE: Turning on TV. ROBBIE IVEY: It was kind of, what does my imagination allow me to want to have voice activated? Hey, Google. Turn on row one. [DING] Hey, Google. Turn on fan. [DING] [FAN WHIRRING] Hey, Google. Call Carrie. GOOGLE: Calling Carrie Ivey. [DIALING] CARRIE IVEY: (ON PHONE) Yes, Roberto? ROBBIE IVEY: I am able to do stuff on my own. And at let's me give my mom a break a little bit. CARRIE IVEY: I expected not to get any sleep for the rest of my life. And here, you know, I can get out and take a walk. Sometimes I need that hour, hour and a half of sanity to get away from, hey, Google. Hey, Google. Hey, Google. [DING] SPEAKER 1: Also these. He has no choice. I bought them for him. ROBBIE IVEY: So is that all the shirts I'm taking? BILL WEIS: Voice activation opened up a whole new world that I don't think many people really can understand yet. Robbie's got a lot more freedom than he had before. ROBBIE IVEY: Most people think that just because you're in the chair, everything's disabled. But my main attribute's my mind. CARRIE IVEY: I've always had the hopes that he would go to college. He's an honor student. He's incredibly smart. BILL WEIS: He applied for four or five colleges, and has acceptance letters from every one he applied to. ROBBIE IVEY: After 19 years, it's kind of about time to start going off on your own. Doing your own thing. BILL WEIS: Robbie's bedroom back home helped Robbie gain independence. We've tried to replicate that same environment here at the dorm. ROBBIE IVEY: Hey, Google. Turn on the head. GOOGLE: You got it. Turning on the head. BILL WEIS: He's in an environment that's all new. And I think to know that he hasn't lost all of that capability that he gained will be comforting to him. [DING] But beyond that, he'll be challenged in ways that hasn't anticipated yet. CARRIE IVEY: He has a drive. He wants to succeed. He wants to be something. And as long as he pushes, that's what he's going to get. Bye, Rob! ROBBIE IVEY: Bye! I'm excited for this new chapter. And I feel like everything's in front of me. [MUSIC PLAYING]