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  • when you pull it a cool put mom's name, Wash your hands in peace.

  • Yes, you can get a photo bed of us telling state mayoral, put on yuppies.

  • But then, from that moment on, virtually everything has to be done for him on your face later.

  • It's the simplest up right.

  • Put on your face around Haft rate.

  • That's it.

  • From Seton drunk.

  • The bathrooms are starting.

  • Is Dele routine in all the way through the T.

  • Look away.

  • Turn around.

  • That's it.

  • Lay that.

  • That's a fact.

  • It they will play that slowly.

  • Careful.

  • And that's 24 7 Yeah, it's 50 miles each way.

  • So it's 100 mile round trip.

  • My name is Julia.

  • I care for my husband, Bob.

  • We live in their sex.

  • What are you hoping for today?

  • I hope you make me laugh.

  • He usually does.

  • Um, I hope he recognized May.

  • What's hard?

  • A few having him in hospital or having him its speed harder at home.

  • And it will be hard.

  • A guy you talk state look like from the other day when I bragging you.

  • You told me you were on the ship.

  • Remember that what I should Where were you going to then?

  • Don't know.

  • OK, Bob has dementia.

  • He has Parkinson's.

  • And he has diabetes.

  • That causes a number of problems for him.

  • Number of problems for May Hiss.

  • Keira.

  • Full time.

  • Kara.

  • I had to give up my job to look after Bob.

  • Ready?

  • 123 Good man.

  • You know, people think dementia.

  • You're just gonna get forgetful.

  • You're going to get a little bit muddled.

  • It's That's just the tip of the iceberg ago.

  • I'm looking forward to in coming home because I've missed him.

  • I want to give him another chance.

  • I want to allow it to give him some life.

  • Coming.

  • Coming with what?

  • Bit of freedom, Liberty, mobility and mind He's got left.

  • May name Czar McGuire A litany.

  • Constant Fontaine.

  • I've been married to John a 46 nearly 46 years and I look and care for John Low as he has all Samos.

  • Okay, drink, etc.

  • Get a drink, etc.

  • If we call that now you know what's what, guys.

  • John B.

  • Just it say the happy bowl looking claimed person didn't really worry about anything.

  • Worker.

  • Oh, hold worker doesn't always wanna were cold worker, but what is plodding along late Everybody else dcd brought family off in Regis Thought would make his rule wrong into retirement.

  • Yes, and see what happened then.

  • Oh, sitting on the doctor that they watching the time.

  • But unfortunately, that didn't really receive your eyes costs.

  • Obviously, John was diagnosed in 2012 when he was 57.

  • I think one of the reasons I fell in love with him he was just so family.

  • It was his humor.

  • It just made me cry with laughter.

  • Remember the way he Waas had would looking He waas And then I look at him now and he started changed after 3123 Bob Spain in and out of hospital for many months, but was only 69.

  • So really too young toe, be thinking of other options.

  • Welcome home.

  • Okay.

  • Going right.

  • What's it like to be home, right?

  • You're good.

  • Easier?

  • Are you hopeful?

  • Have a chance to prepare the house.

  • But I've had more of a chance to prepare mentally and emotionally.

  • Yeah, I'm gonna come and help you out of that young coming.

  • Yeah, I paid the trial.

  • Did you?

  • You used to get good days.

  • Then you'd get good half days, then you'd get good hours.

  • You still hang on to that.

  • Hope that hes back Course he isn't back.

  • This is one of the things that could take so long.

  • Toilet.

  • I think I'm quite positive what body I think is telling me.

  • Otherwise.

  • It's eh, Pretty.

  • You lose a little bit more.

  • No matter what you do, you will never come back.

  • Next one.

  • It's a cruel disease.

  • It's awful.

  • That's gonna be nor happy ending.

  • What whatsoever?

  • It's just awful.

  • Pininfarina!

  • Koubriti!

  • Okay.

  • Don't.

  • Yeah, right.

  • What you think of an What do you think about it?

  • Uh huh.

  • She's still a lot for you, isn't she?

  • All you get back is known that you're doing your best, right?

  • You're gonna go for it then straight up the stairs to bed.

  • Pope, go forward.

  • Don't lean back on.

  • May cause we'll both go down.

  • This stays.

  • Is it getting more difficult to love the man that you love?

  • I don't think it's harder to love him.

  • It's hard to love some of the stuff that happens.

  • No flakes.

  • Dementia is a faith Because not only does it steal the husband 54 for me Bob, Help me.

  • It steals your hopes and it steals your dreams.

  • It steals your future.

  • And in a in a strange way, it's stealing.

  • My life was so decent now.

  • So noting that door just get a picture of probably the worst part of the guy.

  • I have to try and have something to look forward.

  • So because if you haven't, it's gonna claim you it's gonna make you ill.

  • Is gonna make you depressed because you're exhausted.

  • You should not be in bed with you over in an ideal world.

  • Absolutely, yes.

  • It's not the adventure that is killing May.

  • It's exhaustion.

  • God bless you.

  • Sleep tight.

  • Don't wake me up.

  • That was quite half.

  • It isn't sustainable, I told myself.

  • I can tell himself in the head.

  • Raindrops are falling on my head and just like the guy who's here to support, you just have to train grasp onto bits.

  • What you think, still, mate?

  • May you may get something out.

  • That's what I try to do cross any detainee but of happiness, for want of a better word in just crying.

  • Meet more is your friend.

  • Good morning to you.

  • Want to sit you in, George city sits here, John 300 all afterwards.

  • Just hope I can do the best look after shown.

  • So we do the balloon first traces.

  • Can you see that John might have to go into some residential care in In the end, being realistic, that probably will happen is for them.

  • It's too far for sure.

  • Hey, doesn't know.

  • So I don't think I'm so hungry.

  • Team, too.

  • You very tough on yourself.

  • And you're very lovely to him.

  • Doesn't the horsey and not me?

  • Oh, 00 So probably I recall this because there may be somebody can give us the answer.

  • What was supposed to do at night?

  • People say to me about the nights up was shouting his head off.

  • Some nights he was falling out of bed as well.

  • He was just waiting the floor.

  • It was laying in your in.

  • I couldn't lift him, got hurt myself.

  • Oh, yeah, 10 miles.

  • I think care is desperately needs a time out.

  • Stand up, stand up, Stand up.

  • There's never that wonderful break.

  • Unless shoot, you're able to pay for it.

  • And care is so expensive.

  • I'm going to my GP that if you go Bob's going to the app has to come toe.

  • You talked about residential kid?

  • Is that an impossibility?

  • Where are we with that?

  • Because we've got savings.

  • Would have to fund that.

  • Wonderful.

  • Thank you.

  • When I've been phoning around various homes, some of them were quoting £1800 awake.

  • And I think how how are you charging that?

  • I'm quite convinced that somebody's getting very rich out of frail, vulnerable, very, very sick people.

  • And that is wrong.

  • No.

  • Yeah.

  • Any more news on there?

  • Get on the anybody can see on there.

  • You remember.

  • Remember that was was Amanda.

  • Amanda wanted for call.

  • Alu connected.

  • Love.

  • Did you see this?

  • I said, Luke.

  • They trained not to think about it too far ahead because no one knows what tomorrow is going to bring.

  • What about the future?

  • Our voyage about are probably from D one because of the money.

  • Yeah, I probably couldn't afford to live here, of course, of the teeth or drugs money with him anyway.

  • So really, if it was this moment in time, I would be left with nothing.

  • I mean, after all the care you're giving, you could still end up with Uh huh.

  • scary.

  • It's very scary.

  • Very scary.

  • Trying to work something out.

  • Yeah, yeah, it's the Chinese head.

  • He knows what he's gonna dough.

  • But things windows with dementia that it's almost like the brain fires up and people are able to do things.

  • And then suddenly they know.

  • And that's where that hope that hope comes in when they're okay and you say I've got them back, be heaven, Find a big through.

  • You can't do things we can't organize.

  • He can't sort.

  • He can't plan.

  • He is lost Those skills and those abilities when Bob has not rested well, he's not very good mobility wise.

  • Let's just talk about you for a moment.

  • What do you want?

  • I just want him to be well, I want a word.

  • Magic moment of America.

  • I want a miracle.

  • I can't have that.

  • Dementia will take over and destroy every part of your life is a thief.

  • It comes along and it steals.

  • And actually, in the end, it kills as well.

  • On that Saito.

  • Other carers to all in your power.

  • Don't Don't let it claim you as well, Theo.

  • Loneliness is just terrible.

  • War report here.

  • One of port of them.

  • There's a massive port missing.

  • It's not really John.

  • It's not really him.

  • No, but it is.

  • It's still John Still, drama where put its different John.

  • If you had a moment of clarity with him if he had a moment, what would you say to him?

  • Come back back.

  • I miss you so much.

when you pull it a cool put mom's name, Wash your hands in peace.

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痴呆症護理:"不是痴呆症要了我的命,而是精疲力竭"--BBC News (Dementia care: ‘It’s not dementia killing me, it’s exhaustion’ - BBC News)

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    林宜悉 發佈於 2021 年 01 月 14 日
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