Name: TED】Mileha Soneji:帕金森病患者的生活小竅門 (帕金森病患者的生活小竅門｜Mileha Soneji) (【TED】Mileha Soneji: Simple hacks for life with Parkinson's (Simple hacks for life with Parkinson's | Mileha Soneji))
Uploaded: 2021-01-14T07:29:44.000Z
Duration: 6 min 58 s

I bet a lot of you all must have heard about it.

Which means that there are a lot of family events.

我肯定在座很多人 可能都聽說過。

So as a child, my parents used to drag me to these family events.

But the one thing that I always looked forward to

我小時候，父母常硬拉我 參加這些活動。

making us kids have the time of our lives.

使我們這班小童享受了 人生的一段快樂時光。

But then I saw this hale and hearty person deteriorate in health.

那時他充滿自信，也很有權威。

但是不久我見到這位 健壯的男士健康轉壞。

Parkinson's is a disease that causes degeneration of the nervous system,

which means that this person who used to be independent

柏金遜症是導致神經系統 日漸退化的疾病

suddenly finds tasks like drinking coffee, because of tremors, much more difficult.

就連想飲杯咖啡，都會因為身體突然間擅抖， 而感覺飲得困難。

我這位叔叔行路都開始要用助行器，

he literally had to take one step at a time, like this,

就真的好像我照字面講述，他真的要每次只能行一步，

So this person, who used to be the center of attention

He was hiding from the pitiful look in people's eyes.

他要逃避別人用可憐的目光 注視他。

Every year, 60,000 people are newly diagnosed with Parkinson's,

世界上並不是只有他 有這樣的情況。

每年有6萬名病人被確診 患上柏金遜症。

As designers, we dream that our designs solve these multifaceted problems,

我身為一位設計師，總希望自己的設計 可以解決多方面的問題，

能夠以一個方法去解決一切問題

and create small solutions for them and eventually make a big impact.

你總可以針對一些簡單的問題。

So my aim here was to not cure Parkinson's,

想出一些小方案去解決簡單的問題， 從而產生巨大的影響力。

but to make their everyday tasks much more simple,

所以我來這裡的目標 不是治好柏金遜症，

而是令病人在日常的行動中變得更簡單，

Well, the first thing I targeted was tremors, right?

My uncle told me that he had stopped drinking coffee or tea in public

對了，我想第一個處理的就是病人的 擅抖問題，

我叔叔曾經說他為了避免尷尬，

於是我設計一個不會溢出 液體的杯子。

The curve on top deflects the liquid back inside every time they have tremors,

and this keeps the liquid inside compared to a normal cup.

每次當病人擅抖時，只要有一個頂部有弧度的杯子， 就會把液體回彈到杯內，

But the key here is that it is not tagged as a Parkinson's patient product.

與一般普通杯子比較，更能令 液體保留在杯內。

It looks like a cup that could be used by you, me, any clumsy person,

這個設計的重點是不會標籤 為這類病人的產品。

and that makes it much more comforting for them to use, to blend in.

它似是一隻你和我或任何笨拙的人 都會用的杯子。

這樣令到病人更加安心使用， 融入杜會。

and then I realized that I was getting very superficial information,

然後我認識到我的認知 實在太膚淺，

But I really needed to dig deeper to get a new perspective.

或者他只回應了我的問題而已。

So I thought, well, let's observe him in his daily tasks,

我一定要加深了解，希望 得到新的頭緒。

while he's eating, while he's watching TV.

And then, when I was actually observing him walking to his dining table,

it struck me, this man who finds it so difficult to walk on flat land,

跟著我正在觀察他步行到餐桌，

Because in India we do not have a fancy rail that takes you up a staircase

沒有優質的電動軌道 助你登上樓梯。

所以每個人其實要靠 自己爬樓梯。

「讓我示範一次給你看， 我是怎麼做到的。」

So he took really long to reach this position,

Is he really, really going to do it without his walker?"

「天啊！他真的要爬樓梯嗎？」

他真的，真的不用助行器 爬樓梯嗎？

而且他做轉彎的動作時， 簡直是輕而易舉。

So this person who could not walk on flat land

所以這個不能在平地走路的人，

On researching this, I realized that it's because it's a continuous motion.

There's this other man who also suffers from the same symptoms

我經過研究後，才明白 因為這是連續動作的關係。

又有另一位男士得到同一病癥，

So the key for me was to translate this feeling of walking on a staircase

And a lot of ideas were tested and tried on him,

but the one that finally worked was this one. Let's take a look.

我想很多方法，經過測試和 讓叔叔試用。

最後成功的就是這個方法。 請一齊看看。

and actually when the staircase illusion abruptly ended, he froze,

當樓梯幻象突然終示， 他就會僵住了。

so why not have a staircase illusion flowing through all their rooms,

這樣為什麼不把樓梯幻象 佈滿所有房間，

What we need are human-centered solutions.

I could have easily made it into a projection,

我們需要的是以人為本 去解決方法。

or a Google Glass, or something like that.

TED】Mileha Soneji:帕金森病患者的生活小竅門 (帕金森病患者的生活小竅門｜Mileha Soneji) (【TED】Mileha Soneji: Simple hacks for life with Parkinson's (Simple hacks for life with Parkinson's | Mileha Soneji))

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TED】Mileha Soneji:帕金森病患者的生活小竅門 (帕金森病患者的生活小竅門｜Mileha Soneji) (【TED】Mileha Soneji: Simple hacks for life with Parkinson's (Simple hacks for life with Parkinson's | Mileha Soneji))

illusion

applause

empathy

impact