Name: 【TED】Salvatore Iaconesi:我腦癌開包時發生的事（Salvatore Iaconesi：我腦癌開包時發生的事 (【TED】Salvatore Iaconesi: What happened when I open-sourced my brain cancer (Salvatore Iaconesi: What happened when I open-sourced my brain cancer))
Uploaded: 2021-01-14T07:29:33.000Z
Duration: 10 min 53 s

Having brain cancer was really, as you can imagine,

你可以想像得到 當我知道患腦癌時

In Western cultures, when you have cancer,

生活在西方文化 如果你得了癌症

Your life as a complex human being is replaced by medical data:

Your images, your exams, your lab values,

一個複雜的人 卻被醫療數據取代：

Doctors start speaking a language which you don't understand.

because they start dealing with the disease,

you're left with questions to which nobody gives an answer.

Can I study? Can I make love? Can I be creative?

And you wonder, "What have I done to deserve this?"

可否讀書？可否做愛？可否創作？

You wonder, "Can I change something about my lifestyle?"

那時覺得不解 ＂我做了什麼得到這樣的對待？＂

＂可否改變自己的生活方式？＂

And, obviously, doctors are the good guys in all these scenarios,

because they are very professional and dedicated to curing you.

很明顯 醫生在這種環境 是最得人心

But they also are very used to having to deal with patients,

因為他們非常專業 而且盡心醫病

so I'd say that they sometimes lose the idea that this is torture for you

但是醫生照顧病人 實在太過熟練

and that you become, literally, a patient --

有時忘記了這樣治療 只會折磨你

they tend to not engage you in any way to learn about your condition,

or showing you ways in which you can change your lifestyle

to minimize the risks of what you're going through.

in the hands of a series of very professional strangers.

I asked for a printed-out picture of my cancer

要求醫院給我一張自己腫瘤的圖片

because it's not common practice to ask for a picture of your own cancer.

因為醫院通常不會允許病人這樣做

"Okay, cancer, you're not all there is to me.

A cure, whichever it is, will have to deal with the whole of me."

And so, the next day, I left the hospital against medical advice.

無論什麼方法 也要待我如完整的人

I was determined to change my relationship with the cancer

第二日我不理他們的勸告 離開醫院

and I was determined to learn more about my cancer

before doing anything as drastic as a surgery.

I'm an artist, I use several forms of open-source technologies

我從事藝術工作 因此可以在制作室

So my best bet was to get it all out there, get the information out there,

利用多種的網上共享技術和資料

and use it so that it could be accessed by anyone.

So I created a website, which is called La Cura,

跟著用來研究 任何人也可以享用

and that's a thing which we can talk about in another speech.

這個話題 我們留待下次演講再說

the word "cure" can mean many different things.

it means eradicating or reversing a disease,

from the Mediterranean, from Latin countries, from Africa,

Of course, I was interested in the opinions of doctors

but I was also interested in the cure of the artist, of the poet,

I was interested in the psychological cure,

I received lots of media attention from Italy and from abroad

and I quickly received more than 500,000 contacts --

獲得很多意大利和海外媒體的注意

most of them were a suggestion on how to cure my cancer,

but more of them were about how to cure myself

【TED】Salvatore Iaconesi:我腦癌開包時發生的事（Salvatore Iaconesi：我腦癌開包時發生的事 (【TED】Salvatore Iaconesi: What happened when I open-sourced my brain cancer (Salvatore Iaconesi: What happened when I open-sourced my brain cancer))

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【TED】Salvatore Iaconesi:我腦癌開包時發生的事（Salvatore Iaconesi：我腦癌開包時發生的事 (【TED】Salvatore Iaconesi: What happened when I open-sourced my brain cancer (Salvatore Iaconesi: What happened when I open-sourced my brain cancer))

intense

engage

applause

strategy