Name: 【TED】Dave deBronkart: Meet e-Patient Dave(戴夫-德-布朗卡：遇見電子病人戴夫) (【TED】Dave deBronkart: Meet e-Patient Dave (Dave deBronkart: Meet e-Patient Dave))
Uploaded: 2021-01-14T07:27:08.000Z
Duration: 16 min 32 s

譯者: Vicky Chen 審譯者: Chien-Ping 洪健彬 Hung

that we're here to talk about the year of patients rising.

about patients who are taking control of their cases,

有些病人現在能掌控住自己的病情

"You know what, I know what the odds are,

有些病人說：你知道嗎，我知道我有多小的機會，

but I'm going to look for more information.

I'm going to define what the terms of my success are."

I'm going to be sharing with you how, four years ago, I almost died --

found out I was, in fact, already almost dead --

about what's called the e-Patient movement.

I had been blogging under the name "Patient Dave,"

在那時我也發現所謂的e-病人運動--

我等會解釋我所謂的成功是什麼

我一直以病人戴維的稱號寫部落格

當我發現這樣的事情之後 (e-病人)

When I first started a few years ago getting involved in health care

and attending meetings as just a casual observer,

I noticed that people would talk about patients

as if it was somebody who's not in the room here --

以一個非正式的觀察者參加會議時

Some of our talks today, we still act like that.

我注意到人們談論到病人的感覺

You yourself will find yourself in a hospital bed --

So when you hear what I'm going to talk about here today,

first of all, I want to say that I am here

有些人在點頭說「沒錯，我感同身受。」

on behalf of all the patients that I have ever met,

This is about letting patients play a more active role

in helping health care, in fixing health care.

One of the senior doctors at my hospital,

Charlie Safran, and his colleague, Warner Slack,

為了讓病人們扮演一個更積極的角色

that the most underutilized resource in all of health care

Charlie Safran以及他的同事Warner Slack

They have been saying that since the 1970s.

在所有健康關懷的資源裡最沒有被充分利用的

他們從1970年代就一直再宣導這個

and this was when we first landed on the Moon.

that's the place where you and I are right now,

It was about to change in ways that nobody could foresee.

它即將以無人能預知的方式改變

It was a hippie journal of self-sufficiency.

We think of hippies of being just hedonists,

but there's a very strong component -- I was in that movement --

a very strong component of being responsible for yourself.

This book's title's subtitle is "Access to Tools."

It talked about how to build your own house,

how to grow your own food, all kinds of things.

但其中有一個很重要的元素，我自己參與過那一場運動

was the medical editor of the Whole Earth Catalog.

He saw that the great majority of what we do in medicine and health care

如何栽種自己的食物和所有其他東西

of how we actually take care of our bodies.

Well, he also saw that when health care turns to medical care

the key thing that holds us back is access to information.

And when the Web came along, that changed everything,

because not only could we find information,

we could find other people like ourselves

事實上，他說是有百分之七十至八十

who could gather, who could bring us information.

he was in a somewhat more dignified form than he was back then.

主要阻止我們的是資料的取得性

Now, I was an engaged patient long before I ever heard of the term.

當網路時代來臨時，一切都改變了

In 2006, I went to my doctor for a regular physical,

and I had said, "I have a sore shoulder."

我們也能找到有相同狀況的病人

you may have noticed, those of you who have been through a medical crisis

有裝備，能專心一致，賦予力量，有能力了

This morning, some of the speakers named the date when they found out

我是一個專心從事此工作的病人

而且早在我聽過這個專有名詞之前

2006年時，我為了一個例行檢查去看醫生

I had the blue partition carpet on the walls.

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【TED】Dave deBronkart: Meet e-Patient Dave(戴夫-德-布朗卡：遇見電子病人戴夫) (【TED】Dave deBronkart: Meet e-Patient Dave (Dave deBronkart: Meet e-Patient Dave))

immune

engage

access

improve