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  • Personal data doesn’t get much more personal than this- that’s your DNA.

  • Consumer testing companies promise that in exchange for a vial of spit and a fee, theyll

  • reveal your heritage and clues to your health.

  • Called direct-to-consumer genetic testing, the industry has grown in popularity- sales

  • are projected to triple in the next five years.

  • But watch out.

  • After the test is done, those companies still have your genetic data, and there are few

  • limits to what they can do with it.

  • If you read the privacy and the terms of use policies for any of these genetic testing

  • companies, they actually outline for you very clearly all the reasons you might want to

  • really think hard before you participate in them// Recently 23andMe struck a deal with

  • GlaxoSmithKline to provide them data to develop drugs// that is a huge part of the business.

  • These agreements, which consumers must sign, also say the companies may have to share data

  • with law enforcement if compelled by a court order.

  • They haven’t yet complied with any requests, but they may not need to: Police in Sacramento

  • County, California, believe they cracked the long-cold case of the Golden State Killer

  • by matching DNA from a crime scene to one of his relatives through an open-source genealogy

  • website.

  • In 2008, Congress passed GINA - or The Genetic Information Nondiscrimination Act -- which

  • is meant to bar employers and health insurers from using people’s genetic information

  • against them.

  • But there are some loopholes in that law.

  • For example, life insurers could use your genetic information to decide whether to offer

  • you a policy or not.

  • But at least the products do what they advertise, right?

  • Welllllll, yes and no.

  • Brown: One thing that they can definitely 100 percent tell you, is other people that

  • you're closely related to// But after that you get declining accuracy for basically every

  • other application of genetic testing

  • For example, breast cancer.

  • You get a test result back that says you're negative for one kind of breast cancer, but,

  • maybe you are at risk for other kinds of breast cancers, cause there's thousands of markers

  • for these conditions and they're not all well understood.

  • Some consumer DNA companies also claim to be able to give you further health insights.

  • The science is just not there in those roles to effectively say how you should be exercising

  • or eating or what skin care products you should be using based on your DNA.

  • Even if you decide a DNA test isn’t for you, you might want to convince your relatives,

  • as well: Their DNA could inadvertently reveal a lot about you, too..

  • So remember before spitting into that tube: It’s not just personal, it’s familial.

Personal data doesn’t get much more personal than this- that’s your DNA.

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B1 中級

家庭DNA試劑盒是否隱藏著一個祕密? (Are Home DNA Kits Hiding a Secret?)

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    林宜悉 發佈於 2021 年 01 月 14 日
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