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  • Let's Beat Breast Cancer rolls on here on The Exam Room podcast brought to you

  • by The Physicians Committee.

  • My guest today is somebody who has a journey to tell us about.

  • She is still in the middle of it.

  • She is a former guest of the show.

  • And if there was anybody who is prepared to face

  • this journey, it is Allison Tierney.

  • She is the founder of Wholesome.

  • And it is such a privilege to have her back

  • on The Exam Room with us here today.

  • Allison, thank you so very much for being here.

  • Thanks for having me, Chuck.

  • It's an honor to be here.

  • The honor is all mine.

  • And in all honesty, I never thought you and I

  • would be sitting down to do a show like this.

  • You have been on the show previously,

  • but you were talking about your work

  • as an oncology dietitian.

  • And then here we are today.

  • You find yourself in the middle of a breast cancer battle.

  • Let's talk about this.

  • You were diagnosed in May of 2022.

  • When did you first know that something was amiss?

  • Yeah, that's a great question, man.

  • So I actually found, I should say my OB-GYN

  • found a lump

  • during my annual exam in actually April of this year,

  • and it was actually only ten days post breast

  • feeding my second child.

  • So it was very quickly after finishing breastfeeding with her

  • and I went for my annual exam and just during the self

  • breast exam and their breast exam that she does,

  • we found a lump

  • and we didn't really think

  • much of it because it was only ten days

  • post breastfeeding for many people listening

  • and they know

  • that breast feeding can change a lot of things

  • about the breast.

  • And we thought

  • that whatever it might be, we just

  • didn't really think much of it.

  • However, I went home and made sure that I could feel

  • the lump myself and kind of kept an eye on it.

  • And I really think it was my job,

  • my the people that I work with, all of the things

  • that allowed me to go home and just have this intuition

  • to be able to feel the lump, kind of feel what it feels like

  • and if it changed

  • or if it didn't change to kind of keep an eye on it.

  • So that was in April of 2020 this year,

  • and we didn't really do much about it.

  • Now fast forward a few weeks.

  • I kept feeling it and every time I felt the lump

  • I felt really anxious.

  • That's the only way

  • that I can describe it is that I felt really anxious.

  • I had had a lump before between my pregnancies

  • that had been ultrasound.

  • It went away after a cycle and it just went away.

  • So kind of part of me thought,

  • Well, maybe it'll just go away too.

  • But after it didn't go away, I messaged my doctor mostly

  • because I was preparing for a conference

  • where I was the main breast cancer nutrition speaker

  • and came across

  • some of the research and studies about breast cancer.

  • After breastfeeding, I thought, Oh,

  • I feel like this feels like a really good sign

  • that I need to have some peace of mind.

  • So I message my doctor and said, You know, this lump

  • hasn't changed. I continue to feel it.

  • And she was very swift to get an ultrasound scheduled.

  • So I went into the ultrasound,

  • I think it was about a week after that. So this is

  • May of this year, very early May.

  • And I was in the ultrasound

  • and because of my work in the oncology space,

  • I felt very familiar with what happened

  • and it was almost like I could just tell

  • during the ultrasound that things were not necessarily

  • looking the way they should look.

  • And the tech left

  • the room and I had a ding on my my watch

  • saying that I was scheduled for a new procedure.

  • And I thought to myself, Oh,

  • they just scheduled me for a mammogram.

  • This really isn't what it's supposed to be.

  • And I went in for my first mammogram ever

  • and had the mammogram.

  • And then

  • at the facility that I go to, you go into the next room

  • and thankfully they deliver that day results.

  • They have the radiologists look at the mammogram right away.

  • And so I sat in the next room and I was very nervous

  • and she walked into the room and I could just read her face.

  • I knew exactly what she was going to tell me.

  • And she said so.

  • And I honestly, I just broke down crying.

  • And the reason for

  • that was because

  • I felt like I've seen every scenario play out from here.

  • I've seen the good cases and I've seen the very severe,

  • you know, unfortunately, life ending scenarios as well.

  • And so when there's so much unknown,

  • that's all you can think of as you go straight to the bad.

  • So anyways, there

  • she said the next step was that we needed to get a biopsy.

  • And I said, Well, how soon can we get a biopsy?

  • Because I'm supposed

  • to have a plan on Friday to be the main speaker

  • on breast cancer nutrition.

  • And she just kind of looked at me like, what?

  • And so thankfully they were able

  • to schedule a biopsy within just a few hours that afternoon.

  • Got my biopsy.

  • So this was a Tuesday,

  • diagnosed on Thursday and boarded a plane on Friday.

  • And then after the presentation and that weekend, the following

  • Monday, I met right away with a surgeon

  • and talked about the next plans.

  • So that's kind of where it all started.

  • And there's even more to dove into if you want.

  • But I want to ask any questions you got from there.

  • Yeah, for sure.

  • I mean, I just I'm trying to put myself in your shoes

  • and obviously I'll never be able to, but that seems to be such

  • a jam packed week full of emotions.

  • Then you've got the kids, then you've got the conference,

  • the travel that comes with that,

  • and just the not knowing and the angst and you know,

  • what are the next steps and man, I just.

  • Has there ever been such a trying week in your life?

  • No. I mean, probably those that week

  • and the week that followed

  • are probably the most difficult in the entire journey

  • because it's so much of the unknown, the unknown.

  • We fear the unknown.

  • And there's cold out there.

  • And I don't know it perfectly, but it's really like

  • when we don't have knowledge

  • about what's going on, we can lead it to believe

  • to be so much worse than it actually is.

  • And I think that's what happens

  • for most people in that situation, is that you

  • you fear the worst and you absolutely do.

  • And the other thing, too, is, you know, I was diagnosed

  • here in I hopped a plane by myself.

  • I was leaving my family for the weekend.

  • And of course, my husband's

  • going through this emotional experience as well,

  • although he's not physically going through it,

  • he's emotionally going through it.

  • And here I am going to board a plane and leave for a few days.

  • And everyone told me, my whole family,

  • I don't really only share it with my family

  • like you don't have to go, you don't have to do this.

  • And I thought, I think I do need to do this.

  • I need to do this for me and I need to have this experience.

  • It's something that I was looking forward to.

  • And I only told one person at the conference

  • that I was going to about my diagnosis because I wasn't.

  • We may not have a whole ton of information

  • quite yet, but I also didn't want it to be

  • this really awkward experience where I was diagnosed and I'm

  • speaking on the topic without all these questions.

  • So I think that was really hard as being able

  • leaving my family for the weekend and being alone.

  • And of course my husband was worried about me too.

  • So it was definitely

  • a trying weekend,

  • but I'm actually really glad that I did it.

  • And it was a plant based nutrition conference

  • about lifestyle medicine.

  • And so it was

  • it was like kind of the

  • perfect thing that I needed that weekend anyways, for sure.

  • And you know, the other thing that strikes me is

  • when you've been on the show previously,

  • we've talked about your other health struggles,

  • which brought you to a plant based diet to begin with.

  • And so you

  • are a very, very, very healthy eater.

  • You do live a very healthy lifestyle

  • and yet you still got this diagnosis.

  • I know that you must have thought about those two things.

  • Did you ever ask yourself, Why me?

  • What did I do?

  • 100%.

  • I think everybody asks that question

  • and I think it's helpful but really hard to also hear

  • when people hear about the diagnosis, say like,

  • you're one of the healthiest people that I know.

  • And I that was really hard for me

  • and I actually really happy to hear that

  • I'm the healthiest person that they know,

  • but at the same time, really difficult.

  • But I still end up with this diagnosis.

  • But at the same time, what might not be what might be

  • surprising to some people is that I'm not 100% surprised.

  • I mean, I am surprised

  • from the standpoint that I was diagnosed at the age of 33.

  • My mom's a breast cancer survivor.

  • My grandmother on my dad's side is a breast cancer survivor.

  • My godmother, who's

  • my mom's cousin, is a breast cancer survivor.

  • So we have this really extensive family history

  • of not only breast cancer, but other cancers.

  • So it's kind of

  • the reason, part of the reason

  • that I switched to a plant based diet was because of

  • not only my PCOS and infertility

  • that I know we've discussed here on the show before,

  • but because of this overwhelming amount of cancer in my family,

  • so from a standpoint, I'm not super surprised.

  • But at the same time, how early I have experienced

  • this diagnosis is one of the things that is

  • so surprising, I should say.

  • And based off of that, I was actually surprised

  • to learn that I do carry a genetic mutation.

  • So my mom was diagnosed at breast cancer at 49

  • and we actually never had genetic testing done

  • with my mom's breast cancer diagnosis

  • because they didn't believe that it was related.

  • They thought it was

  • hormonally related because my mom

  • had had a hysterectomy and her thyroid removed.

  • So they related

  • that to the hormone replacement therapy

  • that she was on for just a short period of time.

  • So when I was diagnosed at 33, I automatically qualified

  • for genetic testing.

  • But then when it came back,

  • the genetic counselor called me and we actually did

  • find that you do have a mutation.

  • I thought, what, really?

  • Because only 5 to 10% of cancers

  • actually have a genetic mutation related to it.

  • So it was actually a little bit surprising.

  • But as you can imagine, there was lots of emotions

  • back and forth like not surprised.

  • This is my family's history, but I tend to be

  • the healthiest person people know.

  • And and so there's lots of emotions that surround that.

  • And there is definitely emotions of anger.

  • You know,

  • I was at a major League Baseball game a couple of weeks

  • ago, and

  • I see a lot of the choices that are being made around me

  • nutritionally and other lifestyle things.

  • And I just think to myself like,

  • and I'm the one sitting here with this diagnosis

  • and sometimes it feels like a bad person to think that.

  • But at the same time it's very angering

  • to have those frustrations, and I'm sure a lot of people

  • experience that.

  • But to be honest, I only feel that every once in a while.

  • Most of the time it really feels like, okay,

  • this is the next step, this is what we need to do

  • and I just keep moving forward.

  • Yeah,

  • I mean, you can't beat yourself up

  • for thoughts that enter into your mind.

  • I think grappling with

  • those kinds of emotions is perfectly natural

  • and normal and in itself healthy in a way, right?

  • It's absolutely healthy.

  • But let's kind of flip the script here. Right?

  • So that's kind of the doom and gloom and the why me stuff.

  • But the other way that we could look at this,

  • at least I look at it,

  • is because you just mentioned your infertility

  • and your PCOS and many said that that was a hopeless situation.

  • You're able to flip the script on that.

  • You have wonderful, healthy children now.

  • Now you've got another challenge.

  • So it's like, okay, well, let's do this again.

  • And so while you were not able to prevent breast cancer,

  • what the statistics

  • and what the research also shows, though, is that

  • with that healthy diet, with that healthy lifestyle,

  • the outcome on this

  • is so much better than it could otherwise be.

  • Do you find solace in that?

  • Absolutely, 100%.

  • And I think it's one of those things

  • is that that felt like, well, I did all the right things,

  • like how could this happen if I did all the right things?

  • And I think there are a lot of people

  • and that even in just breast cancer

  • type diagnoses, but also other chronic diseases and so forth.

  • But then there's this realization that all

  • the right things that you do

  • or that you did actually are going to be

  • the things that help you through this entire process.

  • And I can say with 100% confidence for myself

  • that my dietary and lifestyle choices are very much

  • carrying me through this diagnosis.

  • And Chuck, I'm

  • sitting before you and I'm halfway

  • through my chemotherapy treatments right now.

  • I had six cycles and I had six cycles left,

  • and I still feel relatively really well.

  • And I think those are the things

  • that are helping me get through this process.

  • And I had a major intense surgery in July

  • that was 10 hours long with a long intensive recovery.

  • And I walked to my follow up

  • post-op appointment only two weeks after my surgery.

  • And so I really credit this to my diet and lifestyle,

  • but also my attitude and things like that

  • that helped me get through this entire past.

  • Well, I guarantee you that unless people knew

  • your story

  • looking at you right now,

  • if they were watching this on YouTube

  • and they've had it on mute for whatever reason the entire time,

  • first of all, turn your speakers on

  • because this is a phenomenal inspirational story here.

  • But number two, you you look absolutely fantastic.

  • And it would be impossible

  • for anybody to say, oh, yeah, she looks like

  • she's really going through it right now.

  • And that, again, is a testament

  • to what it is you were just talking about.

  • It's helping to carry you through this difficult time.

  • I want to go back to your story

  • because I kind of cut you off there

  • when you would return from the conference

  • and you're going in to meet

  • with the doctor again on that Monday.

  • So pick it back up. It's Monday morning.

  • You returned from the conference. What happens?

  • Yeah.

  • So I go and have an appointment with the breast surgeon

  • and the original diagnosis that I was diagnosed

  • the previous Thursday was DCIS or ductal

  • invasive carcinoma in situ with micro invasion.

  • So essentially what that means is that they found

  • that the tumor had stayed within the milk box

  • with only like this tiny little bit that had left enough.

  • So this is actually considered a stage zero breast cancer

  • very early on with just like this little bit that left.

  • So that is the original diagnosis.

  • When I get to the surgeon,

  • she shows me the MRI, we start talking about it.

  • And the other thing about this

  • is that where I'm treated

  • and where I'm going through all of this is the place

  • that I used to work as an oncology dietitian.

  • So I know all the doctors, I know all the nurses.

  • And on a personal level as your colleague.

  • And so this is something that's part of my story

  • and that I think it'd be hard for some people to do that.

  • But I've actually found it very encouraging

  • to be with people and they are taking care of me

  • as one of their own.

  • But they do that for every one of their clients.

  • But are their patients, I should say.

  • But anyways, we get in and we're talking about it.

  • And the biggest the first thing she tells me is

  • I kind of think I'm coming in here

  • for maybe a lumpectomy, maybe radiation and kind of move on.

  • Right.

  • That's sort of the story I had made up in my head

  • with this diagnosis of DCIS.

  • And it turns out she's like, I'm actually really worried

  • that this is invasive, not just DCIS.

  • And I, you know, my mom and my husband were with me and

  • I just kind of felt like we got hit in the face all over again.

  • And so I had to sit for another biopsy

  • and this was a mammogram and guided biopsy.

  • And we took 12 other samples of the tumor that they found.

  • And it still came back with this DCIS with micro invasion.

  • So the next step was surgery.

  • I was recommended a single mastectomy

  • without sparing my nipple

  • because where

  • the tumor was located over once it came back to be

  • a genetic mutation,

  • it's an automatic recommendation for a double mastectomy.

  • And then there's a there's so many different pathways

  • that women could choose to go down here

  • in this particular scenario.

  • So it was a single it was for me

  • as a double mastectomy with no reconstruction.

  • Or you could have reconstruction with implants

  • or you could have reconstruction with something

  • called a D flap surgery.

  • So I ended up opting

  • for a double mastectomy with D flap reconstruction.

  • So essentially what the D flap reconstruction is,

  • is it essentially uses your own tissue

  • to recreate the breast for reconstruction.

  • And one of the biggest things

  • that I think about in this process for me

  • about how I ended up choosing the reconstruction path

  • that I chose

  • and the fact that I

  • chose reconstruction is at the age of 33 of diagnosis.

  • I wanted to be able to look in the mirror

  • in a year, five years, ten years, 20 years, 25 years

  • and think, okay,

  • what is going to be the best emotional choice for me and

  • what do I want to look at in the mirror?

  • That's going to be

  • not so much of a reminder of this trauma, but also an

  • uplifting, encouraging.

  • And that's how I chose to go with the reconstruction.

  • Some women choose to stay flat, some choose implants,

  • some choose the C flap and other types of situations.

  • So this was the best choice for me,

  • and I'm really happy with this choice.

  • But it also means that it's a very intense surgery.

  • It's a ten hour long surgery

  • where you have a breast surgeon and a plastic surgeon

  • and you essentially, you know, all your

  • breast tissue is removed.

  • In my case, both my nipples were removed.

  • And then also a huge scar from hip to hip

  • in on my abdomen and that's where part

  • of the reconstruction comes into play.

  • So we go into surgery knowing

  • and I had to wait eight weeks for surgery

  • and I knew that it was going to

  • by choosing this path, it would be a long time

  • to wait for surgery because it takes

  • two very skilled surgeons and it's a ten hour procedure.

  • So it takes up the whole day for an O.R.

  • So waiting that eight weeks to have surgery, knowing

  • this tumor was still in me, that was incredibly difficult.

  • And there's lots of thoughts and processes of like,

  • okay, is this cancer spreading?

  • What is it going to be doing in these eight weeks?

  • However, we do know from research that,

  • you know, most breast cancers take between 3 to 5 years

  • to actually develop to the point where we can actually feel it.

  • So in the grand scheme of

  • things, eight weeks is not a long time.

  • However, emotionally it is a very long time to wait.

  • And we knew going into that surgery

  • that I would have

  • a sentinel node

  • or a lymph node

  • tested to make sure

  • that there was no cancer involvement in the lymph nodes.

  • If that happened to be that there was involvement

  • in the lymph nodes,

  • that they would not be able to proceed

  • with the reconstruction portion of the surgery at that time,

  • because they would have to have radiation.

  • And radiation can, unfortunately, very much impact

  • some of the surgical outcomes when it comes to reconstruction.

  • So going into surgery, we were praying for

  • no lymph node involvement and it was no known involvement.

  • The whole thought was, okay, I'd have surgery

  • and then I'd be done.

  • And it's a lot more simple than that

  • because it's very much an emotional journey

  • for the rest of your life as well.

  • However, so we had surgery, the lymph nodes came back negative.

  • I was able to proceed

  • with the whole rest of surgery

  • and I just had this big recovery ahead of me.

  • Well, fast forward about a week or so,

  • I looked at the pathology reports that came back because

  • in surgery, they send the actual tumor

  • for further pathology to confirm this DCIS with micro invasion

  • and being in the health care space, I had looked

  • at many pathology reports, although I'm not a physician,

  • I mistakenly read their path report

  • without talking to my doctor first

  • and I thought to myself, Wow, I'm reading things

  • that I don't want to be reading that we didn't want to see.

  • And what ends up happening is that it comes back

  • as a different diagnosis.

  • It is not DCIS, it is actually invasive

  • ductal carcinoma, which means that the tumor has

  • no longer stayed within the milk doc.

  • It is actually spread throughout

  • a little bit more of the breast

  • and during that process then the next step is waiting

  • for prognostic.

  • Prognostic is essentially the estrogen receptor positive

  • or negative component.

  • And when we're talking about after gene or progesterone

  • and then there's also another one called HER2

  • and it comes back highly estrogen receptor

  • positive progesterone receptor positive.

  • But we need to wait on the her to the next testing

  • comes back

  • that we don't know about the HER2

  • so we have to wait more and send for more testing and so again,

  • it's just this constant

  • wait that so many cancer patients experiences that fear

  • and the anxiety and the unknown, this constant

  • like knowing that

  • if this comes back positive,

  • I'm going to be having chemotherapy.

  • And so long story short comes back

  • that there was actually multiple tumors within the breast,

  • although we were only feeling one, there was actually a couple

  • different tumors.

  • One of the tumors was DCIS, but other tumors were invasive

  • ductal carcinoma and the DCIS

  • was testing positive for this HER2 component.

  • And if it's HER2 positive, it's kind of an automatic qualifier

  • for treatment, essentially.

  • And they were unable to detect any invasive component,

  • whether it was DC positive.

  • So we had to make this decision of do

  • we operate off of the fact

  • that clinically speaking this is HER2 positive. So

  • coming back to being an oncology dietitian,

  • I very much understood

  • all of this lingo and all the things

  • that we were talking about here as my family

  • and my husband were like, Wait, what?

  • I'm very much confused.

  • So in this whole process, being an oncology

  • dietitian, being in this space has been actually very helpful.

  • And in some portions it's

  • been a course at the same time where you kind of know

  • the stories, you know what to expect.

  • And so from there, it was found that

  • it was no longer just surgery that I would need.

  • It was recommended to have chemotherapy, immunotherapy

  • and also endocrine therapy would be recommended

  • once I finished treatment.

  • So right now I'm in the middle of my chemotherapy.

  • I actually finished my halfway point last week.

  • I get treatment every Thursday for 12 weeks with chemotherapy

  • and immunotherapy,

  • and after that, six more treatments of the chemotherapy.

  • I'll switch over to just immunotherapy every three weeks

  • to finish out for another nine months.

  • So it's actually a

  • much longer process and journey than we ever anticipated.

  • But we're moving through it and we're thankful for that

  • for sure.

  • You know, and glass half full approach here.

  • I would think that given the nature of your profession,

  • I think that moving forward, this is going to help

  • you have an even greater understanding of what

  • your patients are going through and everything that encompasses

  • a diagnosis like this.

  • And you're getting you know, the

  • I mean,

  • as much as it seems like

  • they could throw at you, it seems like

  • it's being thrown at you right now.

  • And that gives you great insight and great wisdom.

  • And I think that once all of this is behind you,

  • all of that wisdom is going to be to the benefit

  • of everybody who comes into your professional life.

  • Yeah, I hope so.

  • I mean, that's something that I constantly think about.

  • Yes, I am doing this for me and my family.

  • But, you know, if I can think about it, okay,

  • how can I help just one other person?

  • And again,

  • if it's just sharing my story of how we found this right

  • and knowing that, yes, I was diagnosed at 33 and I

  • have very good plant based diet and physically active.

  • I'm a healthy weight. I don't drink, I don't smoke.

  • I've never done any of these things.

  • I don't eat red meat right?

  • Like that's

  • one of the things you go in to the oncologist

  • and he asks you these questions and I can say, no, no, no, no,

  • I don't participate in these things.

  • And I hope that it can be awareness that,

  • yes, we can definitely reduce our risk of

  • having breast cancer

  • or other cancers or other chronic disease

  • through these healthy lifestyles.

  • But it also doesn't mean that it's not possible.

  • And so from that, I really hope that people take awareness

  • from it. Right?

  • Know your body today, not come home.

  • Felt the lump that my doctor was talking about, paid attention

  • to it, and also known what my body normally feels like.

  • And listen to that intuition.

  • I don't think that we'd be here at this point. Right.

  • You know,

  • I'd still probably be going on living my life,

  • but we might find it at a much later stage and a much

  • more difficult journey than we found it.

  • And so I truly believe that my diet and lifestyle has led to

  • early detection and it could have been a lot farther along.

  • We don't ever know that.

  • So, yeah, absolutely.

  • I hope that this experience only helps me help other people

  • throughout beyond this

  • because unfortunately

  • there are going to be women

  • who experiences and go through this in the future.

  • Of course, everyone wishes

  • that weren't the case, but hopefully I can have

  • a powerful impact in early awareness

  • and detection and help people throughout the journey as well.

  • How's your mind today?

  • How are you feeling?

  • I mean, you're halfway

  • through the treatments, you're on the show.

  • You've always been upbeat, you've always been positive.

  • Are you feeling a little bit better

  • about your situation today than you did maybe six weeks ago?

  • Six months ago, you know, absolutely.

  • Yeah. Yeah.

  • Honestly, I do have my moments where,

  • you know, I'm frustrated, I am emotional.

  • Maybe a little bit angry.

  • But to be honest, I am mostly

  • have this attitude of like, okay, this is next,

  • you know, the first four cycles of chemotherapy,

  • because I go weekly, it was kind of like,

  • okay, this is the next step.

  • You know, last week I told my husband before,

  • I was like, so really Thursday already.

  • And we're doing this again, like,

  • because it kind of feels like it's this constant.

  • You don't really get this break in between treatment to start

  • feeling well you know, my

  • although I do feel my best on Tuesdays and Wednesdays and so

  • I've actually been working a little bit

  • through this entire process

  • because it helps me mentally, it helps me emotionally,

  • you know, to move through this and know

  • that I can help people through the process, too.

  • So in a way, working and doing these things is it's

  • part of the treatment process part it's part of healing for me.

  • What do you have planned for after the year?

  • The next six weeks are over.

  • Like, is there a big party that's planned?

  • What's what's going to happen?

  • Yeah,

  • you know, there isn't

  • currently a big party plan, but I keep talking to my husband

  • about having

  • a little getaway vacation and we decide

  • whether we're going to bring the kids or not.

  • You know, I have a 19 month old,

  • so she's kind of hard to travel with at this age.

  • But I'm hoping that there is a there's a vacation in the future

  • just to kind of disconnect for a little bit.

  • Yeah, I think I mean, it goes without saying that

  • you deserve it.

  • I mean, there's

  • there's no question you don't just deserve it.

  • You need it like get the doctor to prescribe it for you.

  • For goodness sakes.

  • Just just go pack your bags.

  • Yeah, absolutely.

  • Yeah.

  • No, we're looking forward to something like that.

  • And, you know, and it's been a journey for all of us.

  • I have a five, almost six year

  • old, a 19 month old, and then my husband.

  • And, you know, it's it's been hard with the kids.

  • And I almost feel

  • like the hardest part of this journey is it's the kids, right?

  • You still have to be a mom.

  • You still have to

  • get the pack ready and the lunch ready and, you know,

  • all those types of things.

  • And that's hard.

  • But also one of the most encouraging things, right?

  • Because you still have the kids,

  • even though our five year old kind of understands it.

  • You know, she knows what my port looks like.

  • She has a stuffed animal that has a port in it

  • that she sleeps with every night.

  • So she gets it to that certain extent.

  • But there's so much joy and there's so much,

  • so much that they love like this going on in their life

  • that brings joy back to you.

  • And that's really helpful.

  • And a lot of other moms

  • that I that I talked with before that have had breast cancer

  • at a young age.

  • And I'll say that one of the best things is

  • that they won't remember this.

  • You know,

  • they might have

  • a fleeting memory of it, which in a way is encouraging

  • at the same time.

  • Five Yeah, you know, you never know

  • how much a five year old is going to retain.

  • Having the stuffed animal

  • with the port kind of, I would think normalizes.

  • I don't want to use that term normalized.

  • But de-stigmatize is it takes a lot of the scariness

  • away from it.

  • So I'm guessing like that's part of your goal

  • here is like this is this is what happens.

  • Yeah.

  • You know, you don't have to freak out

  • because mommy's got this thing right now.

  • It's it's going to be okay.

  • And look, you know, here's here's your stuffed animal.

  • And I think part of that, too, I think one of the best things

  • that we told our five year old is

  • my mom is a breast cancer survivor

  • and she watches my daughter pretty regularly.

  • And I think

  • when we told her

  • we wanted to make sure we had all the information

  • before we told her so that she could ask questions.

  • And I think the best thing that we told her was that, you know,

  • grandma's a breast cancer survivor. Did you know that?

  • She said no.

  • And it's like,

  • look how healthy grandma is

  • and she plays with you and she can do all the things.

  • Mom's going to be able to do that, too.

  • And I think that was the kicker to know that

  • I said that Mom wasn't sick, we just needed to get it fixed

  • and that other piece of my journey too

  • is that I have been able to keep my hair

  • through chemotherapy and using a cold capping system.

  • So the chemotherapy that I am undergoing does cause alopecia

  • or the loss of hair.

  • But I've been going through a cold gapping system

  • that actually helped save your hair.

  • And so after six cycles, you would never even know

  • and part of the reason why we chose that path for us

  • is for our kids

  • so that I wouldn't look sick to them,

  • so that we could help normalize life for them.

  • What is a cold capping system

  • for those of us who aren't familiar?

  • Yeah, absolutely.

  • So during chemotherapy,

  • I wear this thing on my head, essentially a giant ice pack.

  • It kind of almost looks like you're

  • wearing like this undergarment to a like a spaceship.

  • Right?

  • So it's essentially this system that moves

  • really, really cold water through the top of your head.

  • And essentially what it does is it affects the very tip

  • of the follicles of your hair and constricts the blood vessels

  • so that some more of the chemotherapy

  • is unable to be delivered to that very end of the cell.

  • So I wear it for 30 minutes prior to infusion during

  • infusion and also 60 minutes after the chemotherapy infusion.

  • And that has successfully been helpful for me to save my hair.

  • It's not allowed or it's not able to be used in all types

  • of chemotherapy and all types of cancer in tumor types.

  • But for my type of treatment,

  • I am a very good

  • qualifier for it and I do have very thick hair.

  • So that is a very helpful thing in this process for us.

  • It's okay, so it's a silly question,

  • but we're talking like cold water here.

  • How cold are we talking?

  • Are we talking like one degree above freezing?

  • We are talking about when I take it off of my head,

  • there is a layer of snow or ice on the top of my head.

  • So it's very cold.

  • I'm under a blanket like this.

  • And then the other thing is that my chemotherapy also can cause

  • peripheral neuropathy, which is the tingling

  • and numbness in your fingers and toes.

  • So I'm also using my fingers and toes during the chemotherapy.

  • So I have ice on my head, ice on my fingers and ice on my toes

  • and a giant big blanket to help me get through that

  • about two, two and a half hours that I'm doing that.

  • And it's not fun during it, honestly.

  • It is a very intense process that's very uncomfortable.

  • However, I've been able to save my hair and knock on wood.

  • I don't have any peripheral neuropathy yet,

  • and peripheral neuropathy can become permanent.

  • Permanent.

  • So these are all strategies that I'm using to help

  • lessen the path moving forward.

  • For me,

  • I'm just going to throw this out there

  • that whatever vacation you take at the end of

  • this should be someplace warm, tropical,

  • sunny beach, just saying, wow, that is what I am imagining.

  • Chuck Yeah, yeah, that is, that is intense.

  • That is next level intense.

  • Man, you're a warrior.

  • A couple of questions here I want to turn over to the diet

  • portion of things.

  • Have you had the opportunity with the team

  • that you've been working with your team of doctors

  • to talk to them at all about nutrition and some of the

  • research that you're familiar with

  • and how that might help their patients?

  • Yeah, absolutely.

  • So as I mentioned before,

  • this is

  • actually the cancer center that I worked at

  • when I was in traditional practice.

  • I'm now in my own private practice,

  • so I'm very familiar with the medical team.

  • My oncologist, you know, I picked based on, you know,

  • knowing him when working at the cancer center some very I'm

  • very close with the team and they also very much

  • know my approach to nutrition.

  • So I have been able to talk to them about it

  • and I'm very open about being a guinea pig

  • for them, such as the Cold Cappy And this is a very new thing

  • that they're offering at this cancer center.

  • So I pretty much tell all the team like,

  • come on, you can come look at it in action.

  • But they're also very open to my nutrition approaches

  • during chemotherapy and so forth.

  • So I'm using an approach

  • that's not necessarily super well known during treatment

  • and that's fasting before and after chemotherapy.

  • I am definitely my own guinea pig.

  • There is some research on it,

  • but there also needs to be further studies on it.

  • And my physician is very open to it because

  • they are very open to the fact because they know

  • that I'll do it appropriately and in a smart way.

  • So that is something.

  • And then also there are two dietitians at the cancer center

  • that I work at and one of them I actually hired myself

  • and when I worked there.

  • So I'm very

  • I have a dietitian that follows me

  • and it's one of those things is that

  • I'm very open to the fact that everybody has different ideas.

  • And so I take what they recommend.

  • And I also share with what's been working

  • well for me so that hopefully it can be helpful as they go.

  • Moving forward with working with patients too.

  • I'm curious about the the fasting approach here.

  • What is the theory behind that

  • and what is the research showing?

  • Absolutely.

  • So the research is still in a little bit earlier, the studies,

  • we do need more clinical data

  • and there are some contraindications of what

  • when someone should not fast prior to chemotherapy.

  • However, the research varies a little bit

  • in terms of what the protocol would look like

  • depending also on the treatment that that person is receiving.

  • So I really I receive weekly chemotherapy.

  • So when I actually thought about doing fasting for myself,

  • I thought, oof, weekly fasting is a little bit too much

  • from that standpoint

  • because we also want to make sure

  • that the patient is nourished enough, doesn't lose

  • too much weight, isn't risking

  • malnutrition or sarcopenia, which is like the loss,

  • involuntary loss of skeletal muscle

  • and those types of things.

  • And so really

  • what it looks like for me is I'm fasting a period of time

  • for a certain number of hours prior to chemotherapy infusion

  • and then also I finish that fast

  • 24 hours after chemotherapy infusion.

  • So there is each week, there's about two days

  • or so that I'm only drinking water.

  • And really the theory behind it

  • and what the research is showing is that it can help

  • protect the healthy cells.

  • The way that I describe it is that our healthy cells

  • are actually really good in times of famine, right,

  • during times of starvation.

  • So when we're not consuming calories,

  • our bodies kind of go

  • and these healthy cells go into this protection mode.

  • Cancer cells, they don't have this protection mode.

  • They have one mission.

  • And one mission

  • only is to grow and divide and be as big as possible.

  • So if we're fasting and then we get chemotherapy

  • or healthy cells are somewhat protected,

  • and then it's also been shown that the cancer cells are going

  • to uptake the chemotherapy

  • more efficiently and be more effective against the cancer

  • and research are showing

  • promising results and improve quality of life

  • and reduce fatigue

  • and also reduce the side effects after chemotherapy,

  • during this fast

  • and with implementing this fasting phase phase.

  • But again,

  • everyone does their chemotherapy in different routine.

  • So mine is weekly.

  • Some people experience it every two weeks,

  • every three weeks, some even every month.

  • And so that really needs to take into consideration.

  • And I have modified my own fasting as a result

  • to make it more sustainable because like there was one cycle

  • where I lost about £2 in the one week and I thought, Ooh,

  • I have nine cycles left.

  • This is not sustainable for me to lose this amount of weight

  • in this period of time.

  • So it has to be a constant check in with your medical team

  • and hopefully in oncology dietitian on your team as well

  • to help you bridge what's important

  • and what works for that individual.

  • But I've seen really good results,

  • but to be honest,

  • I haven't tried a cycle without it,

  • so I don't really know exactly what the control would be.

  • But I have very minor nausea.

  • I have really good energy

  • for the most part throughout treatment here.

  • And I would say that I think it's part of aiding in

  • how I'm doing what they called copy.

  • And and

  • and I see my fingers and toes in fasting,

  • know there's there's a lot of things

  • that I'm doing to try to help myself this process.

  • And I think it's really helping.

  • At least if it's a placebo effect, I will take it.

  • Do you try to eat things that are a little bit

  • more calorically dense

  • knowing that

  • the fasting is coming

  • or are you still eating your regular diet?

  • Absolutely.

  • I do try to increase my caloric load before

  • and after the fasting because the biggest goal

  • throughout the course of chemotherapy

  • for pretty much any patient is actually to maintain weight.

  • Whether that patient is clinically overweight

  • or obese or the patient is at a normal healthy weight mate.

  • Weight maintenance is the primary goal

  • throughout the course of chemotherapy.

  • So I watch that

  • very closely for myself and with the medical team

  • and that does require me to eat a little bit more calories

  • before and a little bit more calories after the fast.

  • But I'm only plus or minus one or £2

  • since the start of chemotherapy after six cycles.

  • And that's a really good place to be for myself.

  • All right.

  • And really quickly here, let's talk about cancer

  • risk eating, that standard Western diet, high fat,

  • lots of calories, lots of highly processed foods.

  • And then,

  • you know, cancer

  • risk for the again,

  • we're going to say the average person

  • because as we've learned here today,

  • you know, there's no such thing as a, you know, sure thing.

  • So the risk on the standard diet versus

  • the risk eating a really healthy, clean

  • primarily if not 100% whole food plant based diet.

  • Absolutely.

  • I mean, the risk of,

  • you know, the average person walking down the street

  • of developing breast cancer for a woman is one in eight,

  • and that is without a known genetic mutation.

  • Right. So I do have a known genetic mutation.

  • So but when it comes to when we see a standard American

  • diet to a whole food

  • plant based and let's even just say like plant predominant,

  • we see the best reduction in cancer risk between

  • the standard American diet and a Whole Foods plant based diet.

  • We see there's also improvements

  • in risk reduction when it comes to a vegetarian diet.

  • And so any time we can move towards a more plant

  • forward, whole food plant based forward approach,

  • we see a reduction in breast cancer and cancer risk itself.

  • And that's really there's so many factors

  • that play a role in why that can help

  • reduce the risk of cancer,

  • starting with the microbiome IGF one, which is insulin

  • like growth factor, which is actually reduced

  • and consuming a Whole Foods plant based diet.

  • And the list goes on and on and on.

  • So and reduction in inflammation, right?

  • It's not even just cancer.

  • It's about overall chronic disease

  • that we can definitely see a drastic reduction

  • in when we have a whole food plant based diet.

  • And what are some of your favorite foods?

  • I was interviewing Dr.

  • Christy Funk this month as part of our Let's Be Breast

  • Cancer series,

  • and she's really big on the Indian gooseberry

  • and on strawberries.

  • What are your really big must have foods?

  • Cruciferous vegetables.

  • So cruciferous vegetables

  • are anything that's broccoli, kale, cauliflower, cabbage.

  • These vegetables that fall into this cruciferous or

  • like cross formation, growing vegetables.

  • And the biggest reason

  • that I'm a big advocate for them is, really,

  • because of the glucosinolates and sulforaphane,

  • which are these phytonutrients that fall under these

  • these vegetables that have some of the best

  • cancer protective qualities.

  • So I personally aim to always have cruciferous vegetables

  • in my day, if not just one serving multiple servings.

  • And I'm also finding during chemotherapy we tend to have

  • some people turned out food aversions or even cravings.

  • And I find that I just want all the roasted vegetables.

  • And lately it's been a lot of broccoli and cauliflower for me.

  • And if I were talking to

  • an individual about, you know, what is one food, right?

  • Because we know it's

  • not one food that can reduce the risk of cancer overall.

  • It is definitely

  • the overall dietary pattern that is the most important.

  • So it's really hard to pick one food.

  • But if I were to pick one, it would be cruciferous vegetables

  • and then take that up

  • a notch too, like broccoli sprouts

  • where we have like 100 times more sulforaphane

  • in the broccoli sprouts than we do in mature broccoli.

  • How do you roast your broccoli?

  • I'll tell you, I'm a I'm a really simple kind of dude.

  • Like, I will steam it just a little bit so

  • it's it gets a little bit soft and then I'll roast it for me

  • and I'll do that sometimes, even without any kind of seasoning.

  • I just think that the roasted broccoli

  • flavor alone is super, super, super tasty.

  • I would love to know what you are.

  • Roasted broccoli recipe is honestly like.

  • I think I'm going to disappoint you. Trekkies.

  • I prefer steamed broccoli over roasted.

  • And the reason I'm like the flavor of the roasted broccoli.

  • But I really struggle with the fact

  • that roasted broccoli can still burn on the floor.

  • It's so much if you don't have it like coated in oil.

  • And we do really recommend trying to reduce our overall

  • oil consumption or at least keep it low.

  • I think there are some great strategies that other people

  • have to help reduce

  • some of that burning that need for oil in order to roast.

  • And more and more steamed broccoli.

  • Like yesterday for lunch, I had tofu

  • and steamed broccoli and I had some noodles

  • that went with it with a little bit of a sauce.

  • And that seems to be my go to right now.

  • So I guess I'm kind of disappointed

  • with the best roasted broccoli recipe

  • cause I don't really have one cauliflower. Or roasted is mine.

  • Oh, okay.

  • Okay.

  • Well, now we'll get to that, but there's no disappointment.

  • Look, I mean, it's your broccoli.

  • You eat it, however the heck you want.

  • It is. It is Alison's broccoli.

  • Who am I to tell you how to eat your broccoli?

  • Come on. That's just silly talk, right?

  • Yeah. All right.

  • But the roasted cauliflower. You just said that.

  • That's your jam.

  • All right, so give me

  • give me the secret sauce here for roasted cauliflower.

  • Yeah.

  • So I cut it into those smaller sizes,

  • and then I use a a blend

  • seasoning that has salt, a little bit of salt, black pepper

  • and garlic that I sprinkle on the roasted broccoli.

  • And I put frozen at 425 degrees on a parchment paper.

  • So the parchment paper helps prevent that sticking

  • and also still allow some of that caramelization to happen.

  • And depending on the size of the cauliflower, it's

  • usually in there

  • for about 20 to 25 minutes with about a stir in between.

  • To me, that the black pepper and I think it's the garlic

  • that really does it for me that I like on this roasted

  • cauliflower and the 425 degrees I find to be the perfect amount

  • for it.

  • There you go. All right.

  • I'm going to try that.

  • I'm going to let you know how it goes.

  • That sounds amazing.

  • Ideally, roasted vegetables are just the greatest thing

  • since sliced bread, and it surpasses sliced bread

  • easily, in my opinion.

  • Yeah.

  • So last question for you.

  • What is what is your prognosis as it stands right now?

  • What have the doctors told you?

  • Yeah.

  • So thankfully my breast cancer is very curative intent

  • throughout the.

  • So if

  • by going through this whole process

  • I'll reduce my risk of recurrence

  • to about five and a half percent

  • if I proceed with endocrine therapy,

  • which would be like

  • tamoxifen for me, then I can reduce it down

  • to another three and a half percent.

  • So I have a very curative

  • breast cancer that we caught very early.

  • So like I've been telling a lot of people, you know,

  • I do believe that I'm going to be well at the end of this.

  • I do consider myself pretty well, even even throughout this,

  • but it's just a little bit icky to get there.

  • I like that.

  • Just a little bit achy, just a little achy.

  • All ethnicities, palatable.

  • We can do it. It's just.

  • Just a little icky.

  • I would love Alison to stay in touch with you and be able to

  • to keep our followers or the exam rooms up to date

  • with how it is that you're doing.

  • I think that there's going to be a lot of people

  • invested in your story

  • now and sending you all kinds

  • of good vibes and well-wishes as you continue down

  • your road to recovery.

  • So if you're up for it, I'd love to check in with you

  • from time to time

  • just so we can give a give the roomies an update.

  • Absolutely. I'd love that.

  • And you know, all of the support, you know,

  • I could say for certain that me and my family wouldn't

  • be in this place where we are today

  • if it weren't for the support, helpful

  • thoughts, prayers, everything throughout this entire.

  • And it takes a village.

  • It's not just me and my husband.

  • There's so many people around us and even and I also believe

  • that the

  • you know,

  • the survivors that came before me, they were key to

  • a part of this for me because they helped me be aware.

  • They helped me pay attention.

  • And I hope that I can help people be aware and

  • pay attention as well.

  • And we'll take all those happy thoughts, vibes, prayers,

  • whatever it is for anybody,

  • we'll take it because it's

  • definitely making a difference for us.

  • Plenty of happy thoughts for me

  • to you, your entire family for a swift recovery.

  • I think that this has

  • been a really enlightening 45 minutes, and I thank

  • you so much for your time and

  • continued success and continued path back to health.

  • And, you know, thank you for being such a brave warrior

  • in all of this.

  • You know, you are truly a remarkable person.

  • So it's been really a privilege to be able

  • to have this time with you.

  • It's been a privilege to be here.

  • Thanks so much, Jack.

  • Appreciate it.

  • If your health

  • IQ was a couple of points higher than it was a few minutes ago,

  • go ahead and like this video

  • or subscribe to the YouTube channel

  • and to take it even higher, head over to Apple Podcasts

  • or wherever you get your favorite shows.

  • Look for the exam room by the Physicians Committee.

  • Hit the subscribe

  • there as well and help to make your world a healthier place.

Let's Beat Breast Cancer rolls on here on The Exam Room podcast brought to you

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Fasting and Plant-Based Diet Help Cancer Dietitian's Breast Cancer Journey

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    林宜悉 發佈於 2022 年 10 月 27 日
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