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  • Hello everyone.

    嗨 各位

  • I’m Sam,and I just turned 17 .

    我是Sam,我剛滿17歲

  • A few years ago, before my freshman year in High School,

    在我要升上高一的前幾年,

  • I wanted to play a snare drum in the Foxboro High School Marching Band,

    我想要在Foxboro高中的步操樂隊打軍鼓

  • and it was a dream that I just had to accomplish.

    它是個我要完成的夢想

  • But each snare drum and harness.

    但每個軍鼓和帶子

  • weighed about 40 pounds each, and I have a disease called Progeria.

    每個大約重40磅,.而我得了早衰症

  • So just to give you an idea, I weigh only about 50 pounds.

    給你們一個概念,我只有50磅

  • So, logistically, I really couldn’t carry a regular sized snare drum,

    所以邏輯上,我無法承受正常大小的軍鼓,

  • and because of this, the band director assigned me to play pit percussion during the halftime show.

    因為這樣,樂團指揮指定我在在中場休息表演負責敲打樂器

  • Now pit percussion was fun.

    現在敲打樂器滿好玩的

  • It involved some really cool auxiliary percussion instruments,

    它包含一些很酷的輔助打擊器,

  • like the bongos, timpani,and timbales, and cowbell.

    像是小鼓,定音鼓,巴鼓和牛鈴

  • So it was fun, but it involved no marching, and I was just so devastated.

    所以很有趣但它沒有包含行軍,我感到身心疲乏

  • However, nothing was going to stop me

    無論如何,沒有什麼可以阻止我

  • from playing snare drum with the marching band in a halftime show.

    和軍樂隊一起在中場休息打軍鼓

  • So my family and I worked with an engineer to design snare drum harness that would be lighter, and easier for me to carry.

    所以我和家人一起改造一個對我來說更輕更簡單的軍鼓帶

  • So after continuous work, we made a snare drum apparatus that weighs only about 6 pounds.

    在持續的工作下,我們完成了大約只有6磅的軍鼓

  • I just want to give you some more information about Progeria.

    我只是想給你們多一些早衰症的資訊

  • It affects only about 350 kids today, worldwide.

    現今全世界大約有350個小孩罹患此症

  • So it’s pretty rare.

    所以是滿罕見的

  • and the effects of Progeria include:

    早衰症的影響有:

  • tight skin, lack of weight gain, stunted growth, and heart disease.

    皮膚緊繃,體重輕,發育不良,和心臟疾病

  • Last year my Mom and her team of scientists published the first successful Progeria Treatment Study,

    去年我媽和她的科學家團隊發表了第一個成功早衰症的治療學說,

  • and because of this I was interviewed on NPR,

    因為這樣我在NPR接受訪問,

  • and John Hamilton asked me the question:

    John Hamilton問了個問題

  • What is the most important thing that people should know about you?”

    ‘你覺得大家知道關於你什麼事是最重要的?’

  • And my answer was simply that

    我的答案很簡單

  • I have a very happy life.

    就是我有個快樂的人生

  • So even though there are many obstacles in my life,

    即使我生活中有很多困難,

  • with a lot them being created by Progeria,

    是因為早衰症,

  • I don’t want people to feel bad for me.

    我不想大家為我感到難過

  • I don’t think about these obstacles all the time,

    我一點都不喜歡這些困難

  • and I’m able to overcome most of them anyway.

    但我可以克服大部分的難題

  • So I’m here today, to share with you my philosophy for a happy life.

    所以我今天才在這裡分享我的快樂人生哲學

  • So, for me, there are 3 aspects to this philosophy.

    對我來說,這個哲學分成三部分

  • So this is a quote from the famous Ferris Bueller.

    這是引述有名的Ferris Bueller

  • The first aspect of my philosophy is that

    我第一部分的哲學是

  • I’m okay with what I ultimately can’t do.

    對於我做不到的事我覺得沒關係

  • because there is so much I can do.

    因為我還是可以做到很多事

  • Now people sometimes ask me questions like,

    現在很多人問我像是,

  • Isn’t it hard living with Progeria?” or

    ’患有早衰症是不是活得很辛苦?’或是

  • What daily challenges of Progeria do you face?”

    ‘你每天因為早衰症而需要面對的挑戰是什麼?’

  • And I’d like to say that, even though I have Progeria,

    ‘你每天因為早衰症而需要面對的挑戰是什麼?’

  • most of my time is spent thinking about things that have nothing to do with Progeria at all.

    我想說的昰,雖然我有早衰症,

  • Now this doesn’t mean that I ignore the negative aspects of these obstacles.

    大部分的時間我都在想跟早衰症完全無關的事情

  • When I can’t do something like run a long distance, or go on an intense roller coaster.

    這不代表我忽略這些障礙帶來的負面觀點

  • I know what I’m missing out on.

    當我不能做像是長跑,雲霄飛車

  • But instead, I choose to focus on the activities that I can do through things that I’m passionate about,

    我知道我失去了什麼

  • like scouting, or music, or comic books, or any of my favorite Boston sports teams.

    但相反的,我選擇專注在我可以而且有興趣的活動上,

  • However, sometimes I need to find a different way to do something by making adjustments,

    像是童子軍活動,音樂,漫畫書,或任何我愛的波士頓球隊

  • and I want to put those things in thecan docategory.

    無論如何,有時我必須找不同方法來調整一些事,

  • Kind of like you saw with the drum earlier.

    我想把它們放在’可以做’的類別

  • So here’s a clip

    有點像是你們早點看到的鼓

  • with me playing Spiderman with the Foxboro High School Marching Band at halftime a couple of years ago.

    這裡有個剪接

  • Thank you.

    幾年前在Foxboro高中軍樂隊時我們演奏蜘蛛人

  • All right, all right, so

    謝謝

  • That was pretty cool.

    好啦 好啦 所以--

  • and so I was able to accomplish my dream.

    是滿酷的

  • of playing snare drum with the marching band, as I believe I can do for all of my dreams.

    所以我可以完成我的夢想

  • So hopefully, you can accomplish your dreams as well, with this outlook.

    和軍樂隊打軍鼓,就像我相信我可以做到我全部的夢想

  • The next aspect to my philosophy is

    藉由這觀點,希望你們可以完成你們的夢想

  • that I surround myself with people I want to be with, people of high quality.

    我的下個哲學是

  • I’m extremely lucky to have an amazing family,

    我讓自己環繞在我喜歡的人身邊,有才能的人

  • who have always supported me throughout my entire life.

    我很幸運有這樣美妙的家庭,

  • And I’m also really fortunate to have a really close group of friends at school.

    總是直持我的家人

  • Now were kind of goofy, a lot of us are band geeks,

    我也很幸運在學校有一群親密的好朋友們

  • but we really enjoy each other’s company,

    現在我們有點傻,我們很多都是樂團怪咖

  • and we help each other out when we need to.

    但我們很享受彼此的陪伴,

  • We see each other for who we are on the inside.

    當彼此有需要我們也互相幫忙

  • So this is us goofing off a little bit.

    我們看到的昰彼此的內涵

  • So were juniors in High school now,

    我們一起打混摸魚

  • and we can now mentor younger band members, as a single collective unit.

    我們現在是高二,

  • What I love about being in a group like the band,

    我們可以在樂團裡教較資淺的成員當作一個集體單位

  • is that the music that we make together

    我最喜歡像樂團一樣組成一組的原因是

  • is true, is genuine, and it supersedes Progeria.

    可以一起玩音樂

  • So I don’t have to worry about that when I’m feeling so good about making music.

    是那麼真實,真誠,讓我忘卻了早衰症

  • But even having made a documentary, going on TV a couple of times,

    當我在享受音樂我根本忘了這件事

  • I feel like I’m at a highest point when I’m with the people that surround me every day.

    當在做紀錄片或是上了好幾次電視,

  • They provide the real positive influences in my life,

    當我跟每天和我相處的人一起我好像是個關注點

  • as I hope I can provide a positive influence in theirs as well.

    他們在我生活中給了很多正面影響,

  • Thank you.

    就像我也希望可以給他們正面能量

  • So the bottom line here,

    謝謝

  • is that I hope that you appreciate and love your family,

    最後,

  • love your friends, for you guys, love you Bro’s

    我希望你們感謝以及愛你們的家人,

  • and acknowledge your mentors, and your community,

    愛你們的朋友,為了大夥,愛你們的兄弟

  • because they are a very real aspect of everyday life,

    感謝你們的良師益友和社會

  • they can make a truly significant, positive impact.

    因為它們是你每天生活很重要的一環,

  • The third aspect to the philosophy is

    它們可以給你們很重要很正面的影響

  • Keep moving forward”.

    第三個哲學是

  • Here’s a quote from by a man you may know, named Walt Disney,

    ‘持續不懈’

  • and it’s one of my favorite quotes.

    這是引述 Walt Disney的話,

  • I always try to have something to look forward to.

    也是我其中最愛的一句

  • Something to strive for to make my life richer,

    我總是試著期待著什麼

  • It doesn’t have to be big.

    某個我可以盡我最大的努力來豐富我生活的事物

  • It could be anything from looking forward to the next comic book to come out,

    它不需要很偉大

  • or going on a large family vacation, or hanging out with my friends, to going to the next High School football game.

    它可以是任何事務,像是下一期的漫畫,

  • However, all of these things keep me focused, and know that there’s a bright future ahead,

    去家庭度假,和朋友出去玩,參加下次的高中足球隊

  • and may get me through some difficult times that I may be having.

    我專注在這些事而且知道我有美好的未來

  • Now this mentality includes staying in a forward thinking state in mind.

    也可能幫我在未來面對難題時度過

  • I try hard not to waste energy feeling badly for myself, because when I do, I get stuck in a paradox,

    這些精神包含保持正面的心態

  • where there’s no room for any happiness or any other emotion.

    我試著不要消極因為如果我這樣會困在矛盾中,

  • Now, it’s not that I ignore when I’m feeling badly, I kind of accept it,

    毫無快樂和情緒的矛盾中

  • I let it in, so that I can acknowledge it, and do what I need to do to move past it.

    不是我忽略壞心情,可以說是我接受它,

  • When I was younger, I wanted to be an engineer.

    我讓它來到,如此我才能承認並想辦法解決它

  • I wanted to be an inventor, who would catapult the world into a better future.

    我小的時候想成為工程師

  • Maybe this came from my love of Legos, and the freedom of expression that I felt when I was building with them.

    我想成為讓世界更美好的科學家

  • And this was also derived from my family and my mentors, who always make me feel whole, and good about myself.

    或許是出自我對樂高的喜愛和我可以隨心所欲的建造它們

  • Now today my ambitions have changed a little bit, I’d like to go into the field of Biology,

    這也是從讓我覺得我自己的全部很棒的家人和良師益友們那得來的,

  • maybe cell biology, or genetics, or biochemistry, or really anything.

    現在我的野心是想從事生物領域,

  • This is a friend of mine, who I look up to. Francis Collins, the director of the NIH.

    或許是細胞生物學, 遺傳學, 生物化學或是任何都可以

  • and this is us at TEDMED last year, chatting away,

    這是我很敬佩的一個朋友, Francis Collins,是國家衛生研究所的主管

  • I feel that no matter what I choose to become, I believe that I can change the world.

    這是我們在TEDMED聊天的樣子,

  • And as I’m striving to change the world, I will be happy.

    我覺得不管我選擇什麼,我都相信可以改變世界

  • About four years ago, HBO began to film a documentary about my family and me calledLife according to Sam”.

    當我努力的改變世界我會變得快樂

  • That was a pretty great experience, but it was also four years ago.

    大約4年前,HBO開始製作我和家人的紀錄片叫作’ Life according to Sam ’

  • And like anyone, my views on many things have changed, and hopefully matured, like my potential career choice.

    這是個很棒的經驗但那已經是四年前的事了

  • However, some things have stayed the same throughout that time.

    就像每個人,我的觀點改變了但願成熟了點,就像我對人生的抉擇

  • Like my mentality, and philosophy towards life.

    但是有些事情還是沒有改變

  • So I would like to show you a clip of my younger self from the film, that I feel embodies that philosophy.

    像是我的精神和生活哲學

  • I know more about it genetically.

    所以我想秀一段影片我覺得有體現哲學的片段

  • So it’s less of an embodiment now.

    在基因方面,我現在更了解了

  • It used to be like this thing that prevents me from doing all this stuff.

    所以現在沒那麼具體

  • that causes other kids to die, that causes everybody to be stressed,

    以前這件事阻止我做所有的事情

  • and now it’s a protein that is abnormal, that weakens the structure of cells.

    造成其他小孩死掉,讓每個人都有壓力

  • So,

    現在是不正常的蛋白,使細胞架構變弱

  • and it takes a burden off of me because now I don’t have to think about Progeria as an entity.

    所以,

  • Okay, pretty good, huh?

    它不再是我的負擔因為現在我不需要把早衰症當成具體的存在

  • Thank you

    好啦 不錯吧?

  • So, as you can see I’ve been thinking this way for many years.

    謝謝

  • But I’d never really had to apply all of these aspects of my philosophy to the test at one time, until last January.

    如同你們看到的,我持續好幾年都是這樣想的

  • I was pretty sick, I had a chest cold, and I was in the hospital for a few days,

    但我從來不需要一次把全部我的哲學拿來運用直到去年一月

  • and I was secluded from all of the aspects of my life that I felt made me, me, that kind of gave me my identity.

    我有支氣管炎病得滿嚴重,在醫院待了好幾天

  • But knowing that I was going to get better, and looking forward to a time that I would feel good again, helped me to keep moving forward.

    我的一切生活被隔離在外,給了我一個身分

  • And sometimes I had to be brave, it wasn’t always easy.

    但知道我會好起來,期待痊癒的那天讓我保持信心

  • Sometimes I faltered, I had bad days, but I realized that being brave isn’t supposed to be easy.

    有時候我需要勇敢但並不是那麼容易

  • And for me, I feel it’s the key way to keep moving forward.

    有時我動搖了,有了壞心情,但我知道要勇敢不會那麼簡單

  • So, all in all, I don’t waste energy feeling bad for myself.

    對我來說這是讓我繼續下去的秘訣

  • I surround myself with people that I want to be with, and I keep moving forward.

    從各方面來說,我不浪費時間在負面感受

  • So with this philosophy, I hope that all of you, regardless of your obstacles, can have a very happy life as well.

    我讓自己圍繞在我喜歡的人中然後繼續向前進 藉由這個哲學,我希望你們,不管你們的難題是什麼都能有個快樂的生活

  • Oh, wait, hang on a second,

    喔,等等

  • one more piece of advice

    再一個忠告-

  • Never miss a party if you can help it.

    如果可以別錯過任何派對

  • My school’s homecoming dance is tomorrow night,

    我學校的反校節舞會在明晚,

  • and I will be there.

    我會在那

  • Thank you very much.

    真的謝謝大家

Hello everyone.

嗨 各位

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B1 中級 中文 美國腔 哲學 樂團 快樂 家人 生活 夢想

【TEDx】早衰症山姆的快樂人生哲學 (My philosophy for a happy life: Sam Berns at TEDxMidAtlantic 2013)

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    Go Tutor 發佈於 2014 年 03 月 13 日
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