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I remember the morning of April 15th, 2013.
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I woke up a morning unlike any other.
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In that wonderful state between awake and asleep,
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I heard the familiar sounds of the milk being pulled from the fridge door
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and the sound of the coffee being poured into the French press.
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And I lay there in my sort of awake, sort of slumber,
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and I think to myself,
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"Yes! My cats have finally learned how to make me coffee!"
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"Yes!" (Laughter)
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I am so happy about this discovery,
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so happy in fact that I opened my eyes
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and standing before me is even a happier discovery:
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a tall, very handsome man that is familiar yet unrecognizable.
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And he has two coffee mugs in his hand, and he says, "Babe, I made you coffee."
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And it all comes flooding back to me.
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Christmas alone. Thanksgiving alone.
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Valentine's Day alone.
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My husband had been gone in Afghanistan, and he was home now.
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So we cuddled on the couch with our coffees,
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and we turned on the television
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just in time to see the elite runners cross the finish line,
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and just in time to hear the words,
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"Lelisa Desisa has just won the 2013 Boston Marathon.
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It is his first Boston marathon."
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And I thought, "Of course, why not win the first one you try?"
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Why? What? I'm going to, right? Certainly.
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And I turned to my husband and I said, "You know,
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we should really do something with our day."
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We're still in our pajamas and this guy's done 26.2.
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So we got up, got dressed, and we went to lunch.
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And he looked at me, and he said, "Do you remember?"
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"Babe, do you remember?"
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And I said, "Remember what?"
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And he said, "This is the same table, this is the same restaurant
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where we had our last meal before I left for Afghanistan.
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Where we talked about what it would be like if I didn't come back.
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Where we talked about what it would be like if I lost a limb.
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Where we talked about what it would be like
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if I were injured in any, any way at all."
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We ordered a couple of cocktails, which I will be later very glad I ordered.
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And we cheered, and we started to make plans
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the way only a military family can make plans when your loved one is home safe.
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And he looked at me, and he said, "Let's go watch the marathon."
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And I said, "Let's do it. Let's do it. Absolutely."
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We crossed onto Boylston Street and "Bam!", we heard a loud bang,
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and next thing we knew, we were on the sidewalk.
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I was looking down at a waterfall of blood
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that used to be my left foot.
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My husband covered in shrapnel.
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And I thought two things.
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Number one: there is not a single man on this planet
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that I would rather be lying next to, in this moment.
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And two: this is it.
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And just when we started to say the things
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that only married people can say in a time like this,
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Boston's bravest came and swooped me up and took me to the nearest hospital.
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And there I was;
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lying there,
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no longer the bronzed, beautiful, ballroom dancer
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bedazzled, ready to perform.
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I was cut up, shredded up, stapled back together,
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sewn up, glued.
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No plastics saw me, let me tell you.
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I lost four inches of hair. I looked like a troll doll.
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I was covered in other people's fabric, other people's blood.
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And it was a mess.
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And I had visitors.
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I had visitors with mouths, and those mouths had opinions.
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And I learned something:
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that people say a lot of things when they don't know what to say.
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And we were told, at an early age,
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that when people say things when they don't know what to say
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and when people say things to make you feel better,
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it comes from a place of love.
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And I got confused; I thought,
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this nurse that's telling me, "You better get it together.
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You better get it together because your family needs you.
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It has already been four days. Get over it.
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Your family needs you. It is on you to make them feel better."
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Or every other person that looked right at me and said,
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"I would have come sooner, but I had no idea what to say,"
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which is a shining billboard
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for those of us that are suffering that says,
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"You are so awkward to be around I can't even be in the same room with you,"
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which turns me into the person that needs to make you feel better.
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And turns anyone lying in a hospital bed to make them feel better.
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So I start to plead, "Friend no, I'm OK, I'm OK, I'm going to be fine.
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I'm going to dance again. I'm going to do all of these things,"
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even if I don't believe it because I feel so badly
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that I am that awkward, and that mangled, and that messed up.
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We are taught at an early age that when people say things and do things
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it comes from a place of love in a time of trauma,
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yet, I am here on this stage to argue differently.
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I think it comes from a place deeper than love.
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I think it comes from a place of fear.
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Fear of the truth.
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We spend our entire car ride,
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after we get that call,
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weaving together
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the perfect amount of sentences that will make the pain go away.
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But our fear of the truth
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is that no matter how many sentences we weave together,
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nothing will make the pain go away.
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I've heard it all. My leg never grew back.
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Fear of this awful truth can make us say some pretty awful things.
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In panic mode, when you see your friend mangled,
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or someone, who shall remain nameless looks at you and says,
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"Well at least you still have a pretty face."
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I immediately respond with, "Well since we're on the subject,
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my brain and my ass are just as stunning, thank you."
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(Laughter)
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"Thank you for noticing that I have a pretty face.
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And that's all I got left in my life. Appreciate that."
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Or a doctor who stops you, who is not my own, make that clear,
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lays a hand on my shoulder at the wheelchair,
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as I'm wheeling through the room and says to me,
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"I need to tell you something."
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"I heard your interview this morning,
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and I heard you say you wanted to dance again
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and I am hear to tell you I've been here, I've been here for years.
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I'm here to tell you you shouldn't have hope.
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I have never seen an amputee dancer in all of my years.
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It's not going to happen, you're chances are one in a million."
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And I raised my finger in the air,
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and I told him if my chances are one in a million I will be that one,
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- mixed with other words -
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and then I turned around
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(Laughter)
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and I wheeled the other direction bawling my eyes out,
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only hoping that my words were true.
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And if you think that's the worse it's not.
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I remember it used to be a friend of mine who came to me, yeah that's why,
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who came to me and said,
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"You know? I'm starting my own business and garbage costs are so awful.
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They're just awful. And they're so expensive.
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I know that they cut off
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the rest of your leg and a lot of other body parts at this hospital.
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Do you know how much it costs to cut off the rest of your leg?"
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Ladies and gentlemen, words are powerful.
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Sticks and stones will obliterate my bones but words will stay with me forever,
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especially in vulnerable times
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that your friends and family will go through,
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not necessarily in my same situation,
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but you will get that call
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when your mother, brother, friend, lover is going through the unimaginable.
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So I'm here to give you the guidebook
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because we will all get that call as much as we don't want to.
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Number one, the most important: take the temperature of the room.
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Are they throwing things? Give them something to throw.
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Are they laughing at the television when you think they should be crying?
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Laugh with them.
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Are they just sitting in silence? Be in silence with them.
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Emotions run high.
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It is important to know the stages of emotions
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when one is facing tragedy,
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especially before you end up in that hospital room.
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Don't tell them what you just googled 5 minutes before you walked out the door,
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or what your religion says about their condition.
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Be present with them. Be their friend.
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I remember one rainy Sunday afternoon
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when my husband and I were going through
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countless brochures, and handouts, and flash dance sweatshirts
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sent to me by every single dance studio in the country
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- which I still wear, thank you -
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- should have worn one today maybe -
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and we were going through all these things
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and I came across two brochures,
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two brochures I hope that nobody in the room has to deal with.
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One was what to do after a terrorist attack.
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The other was how to cope with limb loss.
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And I looked at my husband and I said,
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"Where did we get these? I don't remember getting these?"
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And he said, "Well, the FBI brought the terrorist attack one,
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and a peer visiting group brought the "How to cope with limb loss".
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You threw through it behind your shoulder,
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said, 'I don't know why they brought that. I'm not an amputee.'"
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That, ladies and gentlemen, is proof
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that you will not except help until you are ready for it.
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That day I was ready. He was ready. I was bawling. He was bawling.
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- Sorry to call you out babe -
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We were bawling together, and I thumbed through this thing
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- after throwing the terrorist attack one behind my shoulder
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because "No thanks. I'll be there one day." -
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and I go through this and I say to myself, oh, my gosh!
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Adam, look, look! Look at this brochure. This can help people help us.
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It's the stages of grieving after limb loss,
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which is no different than the stages of grieving;
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from grieving from a loss of a job, loss of a loved one, loss of a friendship.
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Shock and denial. Anger. Depression.
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Pleading. More anger. More depression.
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It's not pretty, but it's there. And acceptance, and helping others.
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Helping others? I wanted to get to that point.
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I was way over here, but even seeing this chart made me feel better.
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I told Adam we have to tell people.
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We have to tell people about this because this makes a difference.
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This is what will help people help people.
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I'll tell you some examples that worked,
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some examples that I've learned after being invited into hospital rooms
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since my tragedy and families' hopes that I would help.
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I'll never forget a friend who said, after a phone call,
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"Hey. I saw you missed your favorite dance show last week.
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It's on rerun tonight. I'm bringing pizza. What do you want on it?"
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Simple. Straight forward. Awesome.
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"Cheese, cheese, and more cheese, please.
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Hospital food stinks. Please, bring it on.
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Pack two. I'll put one in a fridge somewhere."
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Number two.
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I'll never forget
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that someone had dropped off a cup of Starbucks.
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My perfectly ordered cup of Starbucks every single morning before I woke up.
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And perhaps this was the most profound because I never knew who did it.
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And that's my point today.
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Is that it's not about us going to visit our friends.
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It's about our friends, and it's about our loved ones.
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They went out of their way to find out what that cup of coffee was
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and they made it.
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They made that trip to Starbucks, and they ordered that for me.
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They knew my creature comfort.
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Does your friend or loved one have a dirty pair of old socks
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with the holes sticking out that you always make fun of?
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That's there comfort. Bring that to them.
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Print out a photo on Facebook, of their cats, or their family,
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or their dogs, or their cats.
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And bring it to them. Have that be their comfort.
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You don't have to show up. You don't have to say anything.
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It's not about us. It's not about us being the hero. We won't be and that's OK.
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I am here today to relieve you of the burden,
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no no, to relieve you of the stress;
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to give you the permission to show up, shut up, and not say a single word.
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Just be there, hold their hand, and if you must say something
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say the words that my husband says to me,
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"Babe. I do not understand,
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but it is so important to me to tell you how desperately I want to.
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Thank you for your time.
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(Applause)
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Thank you.
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Thank you very much.
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(Applause)